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Low T-Cell - Bone Marrow Biopsy
Blood Cancers & Disorders | Last Active: Nov 15, 2022 | Replies (162)Comment receiving replies
Hi @loribmt
I read your message this morning while I was in the subway on the way to the head MRI, so thanks to you. It went very well. My dizziness has slightly improved today but is still very abnormal. I have this feeling that my gland, throat, and stomach are inflamed, I feel like my glands are getting activated and swollen which is very strange. They said it's not a lymph node as "cancerous" but it can still be a reactive node. I haven't heard back from the conference today...I wrote the doctor and hoping tomorrow he will write back. If not, Wednesday morning I will go to the emergency unless I wait til Friday to get the brain MRT results?
I totally get the new normal after covid, but to be honest with my friends here its like covid never happened haha 😛 I hate this fear of missing out and seeing my friends (or even worst my ex) having a great life. I know that I need to be patient, I am trying my best to be strong but at this point, I only want to go to the hospital and let them figure it out. My immunologist who made me do all the tests and to which we are waiting for the genetic testing told me "maybe you have to live with it" which drives me crazy and therefore when to look for answers elsewhere.
Thanks for the encouraging words about the vaccines. I got one out of 11 :D...I am just scared of the vaccine effect afterward but crossing my fingers it all goes well!
Sending you hugs and a great (sunny) day!
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I was thinking about you today and hoping the MRI went ok. I wondered if the dizziness would bother you when you were lying down. Anytime I get vertigo, I can’t put my head back on a pillow or lean over.
It’s very encouraging that your doctor doesn’t feel your lymph node involvement is cancerous. Doesn’t make you actually feel any better but at least that underlying concern is eased a little.
Have you tried any oral, over the counter, antihistamine, the type used for allergies? Just to see if it relieves your dizziness? It’s something that has helped my mom, my daughter and myself when we’ve had bouts of vertigo. It’s the fluid in the inner ear that causes our familial issue. Just a thought…
Maria, I can really relate to the anxiety over all the vaccinations you need to get in the next few months. But being in a weakened immune state, the reaction you’d get from actually developing Shingles or pneumonia would be far worse than the reaction from the shots themselves. I had over 33 shots (including flu and covid) during the past year. Some of my vaccinations were done in incremental doses. I didn’t feel that I had any physical reaction to the shots except for really sore arms when I’d get 9 at one time. 🙄. The only shot I did react to was my first Covid vaccination and that was related to my transplant.
So look at these vaccinations for what they are. A means to prevent you from developing shingles or pneumonia. It doesn’t mean you won’t ever develop shingles but it can lessen the intensity of the symptoms. Have some ice ready to put on your arm and some analgesic to take for a possible slight elevated temperature and soreness.
You and I live similar lives. I have friends invite me to lunch, but if it’s in a restaurant I have to decline. I see people out with their families, not a care in the world and no masks. I don’t know how they are not getting Covid and it’s as though it doesn’t exist. And yet, in my area of the US the numbers are soaring again. I don’t live in fear. There’s still a ton of activity and enjoyment in my life. But I take it seriously and I’m educated enough to know how important it is to be responsible for myself and others. I’m sorry that your life is being so negatively impacted. Being immunocompromised can make us feel pretty isolated.
Keep me updated! I’m here for you. ☺️