Any new treatments for Vegus nerve injury?

Posted by brendaharvey @brendaharvey, Apr 19, 2022

I am diagnosed with Gastroparesis. I took a fall prior to the start of my pain. I hit directly on my tail bone on a carpeted step. Didn’t think I was hurt at all. But looking back now 3 years later and love living through many tests, diet, medication and seem to slowing be getting better, could this fall have started the Gastroparesis? Is there a chance of getting to eat real food again without painful results? Lost from 130 pounds to 102 today. From year 2019 tom2022? Any new treatments for Vegus nerve injury??

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@brendaharvey

What is the procedure OPOEM?
I would so like to inquire about this for me. I would love to eat more foods and be able to gain some of my weight back.
I weighed 130 when this started and now can’t get get above 104 pounds.

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G Poem is a procedure done endoscoply during which s “tunnel” is made by separating layers of the mucosa in the pylorus so that food empties from the stomach into the small intestine. My husband also takes an antihistamine, cyyproheptadine, which somehow enables him to eat more. The weight gain is slow , but at least he can eat larger amounts than before the procedure. The GPOEM was done at Columbia New York Presbyterian Hospital by Dr Sethi

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There is a typo “during which a tunnel”

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@mgeller604

G Poem is a procedure done endoscoply during which s “tunnel” is made by separating layers of the mucosa in the pylorus so that food empties from the stomach into the small intestine. My husband also takes an antihistamine, cyyproheptadine, which somehow enables him to eat more. The weight gain is slow , but at least he can eat larger amounts than before the procedure. The GPOEM was done at Columbia New York Presbyterian Hospital by Dr Sethi

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Thank you so very much for answering me. I appreciate it so much.
I will check with the Motility Dept and the surgeon at University of Louisville to see if they can do this surgery.
Prayers for your husband to continue to gain weight and eat more good foods. Brenda Harvey

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@mothermary1

Hi, in 2020 I had acdf 3 fusion surgery. I’ve written on blogs here for sometime but my concern is this as well. Since surgery my bowels stopped. Last September I was scheduled for total colectomy but canceled because it just makes no sense to me. Of course the doctor will say could be anesthesia related but rare and doesn’t think his surgery did it. I don’t care how or why, maybe a simple coincidence, but help me. I believe through all my research the vagus nerve is involved but to what capacity, I don’t know and it’s very hard to diagnose. I’m on third gastroenterologist and Wednesday I’m seeing a neurosurgeon who took my surgeons place at Beth Israel in Boston. It appears my doctor at age 57 has decided to not practice any longer. I just want help. I’ve explained in blogs I’ve done naturalpathic docs, acupuncture, PT, pelvic floor PT, colonic hydrotherapy and Visceral massage. All listed were not covered by insurance but I’m not giving up. I’ve had stool testing and food sensitivities testing. I think right now the visceral massage might help. She targets the nerve starting with cranium, it’s in there. Then I open my mouth and in the back she works that area, then neck and so on. She follows nerve from cranium to anus. My Gastro was on board with this and pelvic floor. I’ve been doing pelvic floor for over a year going weekly for months, stopping and going back when I can tell I need it.
I’ve had so many tests but two that were never done was the Smart Pill and endoscopy. My acdf surgery can cause swallowing issues later on and it did so while having that test, she did the balloon procedure and has helped a lot. I did Smart Pill and passed it Friday. It took 76 hours to pass so obviously I have a motility problem. Results this Wednesday with doc. I keep bringing up this nerve but no doctor seems to grasp at the possibility. Everyone has said, tuff to diagnose. I had a friend get Botox for urine leakage and that helped with that but does not last. Maybe find someone trained in visceral massage and see if it does anything. Also, u-tube, jump starting vagus nerve. Their is so much you can do for free. One simple thing is chew chew chew your food forever it stimulates the nerve but so many other things do as well. Best of luck. It’s been a very long road for me. Two years on June 11 and still no answers except remove my colon…..Joanne

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I have slow motility and pelvic floor issues. My pelvic floor therapist does visceral mobilization which helps my constipation. My insurance does cover it.Good luck. I don’t have near your issues but can totally sympathize.

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@johnbluffside

What do those letters stand for ?
I am dx with IBS
I have extreme migraines, very dizzy & weakness . Nauseated and abdominal pain. My 7 th GI have done nothing. See neurologist & ENT soon .
Feeling vagus nerve brain to gut is affected. Had one session of accupunture no difference.
Any suggestions?

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Gastric per oral endoscopic myotomy

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I have achalasia and was given botox injection in esophagus. Worked wonderfully for about 3 months. Stopped and then I had balloon dilation which worked wonderfully for two years. Starting to have some pressure-type
discomfort, not pain again. I read all the posted letters which made me start to think about the vagal nerve
and all the nerves in the stomach. They're responsible, I think, for the rhythms responsible for eating, digesting, swallowing and going to the bathroom. The mystery to me is why no one has experimented with drugs that control the body's rhythms in all the mentioned areas. Perhaps, there has been experimentation but I've tried to find articles and haven't been successful. It would be safer by far to take a pill or have an injection than have
an operation. The botox shot seems to be a step in the right direction. However, I've been told that eventually the botox loses its effectiveness and that too many shots scar the esophagus which makes the POEM procedure difficult to do. Curious about medications other Connectors have been given.

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What age was your husband when he had this G POEM procedure?
I am thinking I might be too old.
Can he eat foods now such as a salad, fresh fruits, a hamburger?
I am so tired of baked or boiled chicken and fish! Would love a salad so so much or “real ice cream” in place of made from coconut!

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@mothermary1

Hi, in 2020 I had acdf 3 fusion surgery. I’ve written on blogs here for sometime but my concern is this as well. Since surgery my bowels stopped. Last September I was scheduled for total colectomy but canceled because it just makes no sense to me. Of course the doctor will say could be anesthesia related but rare and doesn’t think his surgery did it. I don’t care how or why, maybe a simple coincidence, but help me. I believe through all my research the vagus nerve is involved but to what capacity, I don’t know and it’s very hard to diagnose. I’m on third gastroenterologist and Wednesday I’m seeing a neurosurgeon who took my surgeons place at Beth Israel in Boston. It appears my doctor at age 57 has decided to not practice any longer. I just want help. I’ve explained in blogs I’ve done naturalpathic docs, acupuncture, PT, pelvic floor PT, colonic hydrotherapy and Visceral massage. All listed were not covered by insurance but I’m not giving up. I’ve had stool testing and food sensitivities testing. I think right now the visceral massage might help. She targets the nerve starting with cranium, it’s in there. Then I open my mouth and in the back she works that area, then neck and so on. She follows nerve from cranium to anus. My Gastro was on board with this and pelvic floor. I’ve been doing pelvic floor for over a year going weekly for months, stopping and going back when I can tell I need it.
I’ve had so many tests but two that were never done was the Smart Pill and endoscopy. My acdf surgery can cause swallowing issues later on and it did so while having that test, she did the balloon procedure and has helped a lot. I did Smart Pill and passed it Friday. It took 76 hours to pass so obviously I have a motility problem. Results this Wednesday with doc. I keep bringing up this nerve but no doctor seems to grasp at the possibility. Everyone has said, tuff to diagnose. I had a friend get Botox for urine leakage and that helped with that but does not last. Maybe find someone trained in visceral massage and see if it does anything. Also, u-tube, jump starting vagus nerve. Their is so much you can do for free. One simple thing is chew chew chew your food forever it stimulates the nerve but so many other things do as well. Best of luck. It’s been a very long road for me. Two years on June 11 and still no answers except remove my colon…..Joanne

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Your phrenic nerve(s) might have been damaged during the surgery. Here is an anatomy resource for you.
https://www.ncbi.nlm.nih.gov/books/NBK513325/

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@debkl

Your phrenic nerve(s) might have been damaged during the surgery. Here is an anatomy resource for you.
https://www.ncbi.nlm.nih.gov/books/NBK513325/

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Thank so much, seeing neurosurgeon tomorrow in Boston. I will not agree to any surgery but I have many notes for my two year check-up and I’ve added that.

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@brendaharvey

What age was your husband when he had this G POEM procedure?
I am thinking I might be too old.
Can he eat foods now such as a salad, fresh fruits, a hamburger?
I am so tired of baked or boiled chicken and fish! Would love a salad so so much or “real ice cream” in place of made from coconut!

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My husband is 82 and he had the procedure two months ago. He can eat more food than he did before the procedure, but he has not yet been able to put on weight He can eat salad and eats normal food but at times still gets a feeling of being full when he has not eaten that much.

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