Loribmt
Had my blood work and PET scan yesterday and met with Dr Khurana to go over the results.
After 3 cycles of CHOEP chemo treatment therapy the PET scan showed no signs of cancer in the lymph nodes as it did on the first scan 10 weeks ago!!!🙏❤️
This was the news we were hoping for and I’m on target for a stem cell transplant in mid-July after my remaining 3 rounds of chemo.
It hasn’t been easy and I’ve recently developed painful mouth sores but I’m coping.
I hope my results give hope to others suffering from this terrible disease. 🙏❤️🙏
Randy
Randy!!! I’m doing a happy dance for you!! 💃 I can so relate to that feeling of exuberance and relief with test results giving super good news and prayers have been answered! Thank you for sharing this news! It will definitely help encourage others. Your news is another affirmation of hope. 🙏☺️
Blargh, those pesky mouth sores. They magically disappear as your white count rises. In the meantime there are some mouth rinses you can try. Simple at home, ½ teaspoon salt and 2 tablespoons of sodium bicarbonate dissolved in 4 cups of water.
An OTC product called Peroxyl is helpful and I personally used a mouth rinse, Spry by Xclear. It’s very soothing, contains xylitol which helps promote healing and my transplant pharmacist approved it.
And now, phase two of Randy 2.0 Next stop, Rochester! My home away from home. In fact, I’ll be there this weekend through Tuesday. Is there anything I can help you with for this next leg of your journey?
Thanks for your kind and encouraging words! Also I’m using alcohol free Peroxyl now but will look into the other products.
I seem to be good for now but will stay in touch with you.
God bless you and wishing you a great checkup next week!!
Randy
Thanks for your kind and encouraging words! Also I’m using alcohol free Peroxyl now but will look into the other products.
I seem to be good for now but will stay in touch with you.
God bless you and wishing you a great checkup next week!!
Randy
Hi Randy! I had a great checkup. Thank you for asking. ☺️
In fact, my leash has been lengthened again and will only need to report back to Mayo for checkups every 6 months instead of 3. So yay! My doctor is very encouraged (me too) that my AML will not return! The end of June will be my 3rd Re-birthday. ☺️
How are you doing?? You must be getting close to your final round of chemo. How are the mouth sores? I know they’re so miserable but I promise they do go away. It is possible they’ll return during the first couple of weeks after your transplant but the Mayo Transplant teams ‘got cha covered’! When your blood numbers very low…RBC/WBC and platelets, you’re susceptible to infections and mouth sores. But as soon as your numbers start to climb again after the new stem cells engraft, then things turn positive quickly. ☺️
Are you all set for your stay in Rochester? Do you have any questions about lodging or the transplant?
Hi Randy! I had a great checkup. Thank you for asking. ☺️
In fact, my leash has been lengthened again and will only need to report back to Mayo for checkups every 6 months instead of 3. So yay! My doctor is very encouraged (me too) that my AML will not return! The end of June will be my 3rd Re-birthday. ☺️
How are you doing?? You must be getting close to your final round of chemo. How are the mouth sores? I know they’re so miserable but I promise they do go away. It is possible they’ll return during the first couple of weeks after your transplant but the Mayo Transplant teams ‘got cha covered’! When your blood numbers very low…RBC/WBC and platelets, you’re susceptible to infections and mouth sores. But as soon as your numbers start to climb again after the new stem cells engraft, then things turn positive quickly. ☺️
Are you all set for your stay in Rochester? Do you have any questions about lodging or the transplant?
I’m so happy for you!!! That is excellent news. I have 2 more treatments then tentatively scheduled to return to Mayo the third week of July to begin the stem cell transplant process. The mouth sores did go away!!! But they’re just pesky things to deal with in the whole scheme of things.
My biggest side effect is just fatigue but I’ve managed that well.
We have a house and car rented for the duration of our stay in Rochester so we’re all set!
Let the journey continue. 🙏❤️🙏👍
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Randy!!! I’m doing a happy dance for you!! 💃 I can so relate to that feeling of exuberance and relief with test results giving super good news and prayers have been answered! Thank you for sharing this news! It will definitely help encourage others. Your news is another affirmation of hope. 🙏☺️
Blargh, those pesky mouth sores. They magically disappear as your white count rises. In the meantime there are some mouth rinses you can try. Simple at home, ½ teaspoon salt and 2 tablespoons of sodium bicarbonate dissolved in 4 cups of water.
An OTC product called Peroxyl is helpful and I personally used a mouth rinse, Spry by Xclear. It’s very soothing, contains xylitol which helps promote healing and my transplant pharmacist approved it.
I found a good website which helps explain mucositis, the lovely side effect of chemo. https://oralcancerfoundation.org/complications/mucositis/
And now, phase two of Randy 2.0 Next stop, Rochester! My home away from home. In fact, I’ll be there this weekend through Tuesday. Is there anything I can help you with for this next leg of your journey?
Thanks for your kind and encouraging words! Also I’m using alcohol free Peroxyl now but will look into the other products.
I seem to be good for now but will stay in touch with you.
God bless you and wishing you a great checkup next week!!
Randy
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1 ReactionHow was your check up??🙏
Hi Randy! I had a great checkup. Thank you for asking. ☺️
In fact, my leash has been lengthened again and will only need to report back to Mayo for checkups every 6 months instead of 3. So yay! My doctor is very encouraged (me too) that my AML will not return! The end of June will be my 3rd Re-birthday. ☺️
How are you doing?? You must be getting close to your final round of chemo. How are the mouth sores? I know they’re so miserable but I promise they do go away. It is possible they’ll return during the first couple of weeks after your transplant but the Mayo Transplant teams ‘got cha covered’! When your blood numbers very low…RBC/WBC and platelets, you’re susceptible to infections and mouth sores. But as soon as your numbers start to climb again after the new stem cells engraft, then things turn positive quickly. ☺️
Are you all set for your stay in Rochester? Do you have any questions about lodging or the transplant?
I’m so happy for you!!! That is excellent news. I have 2 more treatments then tentatively scheduled to return to Mayo the third week of July to begin the stem cell transplant process. The mouth sores did go away!!! But they’re just pesky things to deal with in the whole scheme of things.
My biggest side effect is just fatigue but I’ve managed that well.
We have a house and car rented for the duration of our stay in Rochester so we’re all set!
Let the journey continue. 🙏❤️🙏👍
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Hug
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