← Return to Small Fiber Neuropathy

Discussion

Small Fiber Neuropathy

Neuropathy | Last Active: Oct 3, 2023 | Replies (213)

Comment receiving replies
@johnbishop

Welcome @steveny9, I think you have asked the question that so many of us have asked. I'm not sure there is an answer. Mine started in my late 40's and I only have the numbness with a little tingling but no pain. There is another discussion on the topic you might want to read through --- Neuropathy: Numbness only, no pain: https://connect.mayoclinic.org/discussion/neuropathy-numbness-only-no-pain/

I didn't bother with a diagnosis for well over 20 years after my primary care doctor told me there was no fix for the problem. Have you been diagnosed with neuropathy or do you just have the symptoms?

Jump to this post


Replies to "Welcome @steveny9, I think you have asked the question that so many of us have asked...."

Hi @johnbishop I was diagnosed by a second doctor more than 16 years ago. (The first doctor did some really painful electrical shots to my feet and legs. He could not diagnose it.) The second doctor told me usually it takes several doctors to finally diagnose a patient. He said I had small fiber neuropathy and there was no cure. The neuropathy started small in both feet. Over time it progressively spread to the entire feet. Now it is spread to the ankle. 11 days ago I stopped statins after I did some research (again!) on neuropathy. Apparently, the brand I was on can cause neuropathy. I have been off statins for 11 days now. I have noticed less tingling in my legs. I really believe the statins were a side effect that added to the problem. I was diagnosed by a second doctor more than 16 years ago. (The first doctor did some really painful electrical shots to my feet and legs. He could not diagnose it.) The second doctor told me usually it takes several doctors to finally diagnose a patient. He said I had small fiber neuropathy and there was no cure. The neuropathy started small in both feet. Over time it progressively spread to the entire feet. How it is spread to the ankle. 11 days ago I stopped statins after I did some research (again!) on neuropathy. Apparently, the brand I was on can cause neuropathy. I have been off statins for 11 days now. I have noticed less tingling in my legs. I really believe the statins were a side effect that added to the problem.