← Return to Newbie MAC caregiver with questions

Discussion

Newbie MAC caregiver with questions

MAC & Bronchiectasis | Last Active: Jul 23 8:34am | Replies (29)
Comment receiving replies
@becleartoday

Welcome to the group!
The 2020 NTM international guidelines state:
"We suggest that patients with macrolide-susceptible MAC pulmonary disease receive treatment for at least 12 months after culture conversion"
However, there have not been many studies on this time frame and it can vary depending on the doctor. It is not unusual to get a positive now and then and still work within the "12 month-ish" framework.
All the best to you,
Linda Esposito

Jump to this post

Replies to "Welcome to the group! The 2020 NTM international guidelines state: "We suggest that patients with macrolide-susceptible..."
Melissa Nelson | @melissa08 | May 17, 2022

That's helpful Linda, thank you.
We have an appointment on Friday with my husband's main pulmonologist. She suggested through an email exchange last week, that she may want to do more sensitivity or susceptibility testing due to the positive culture.
However she wasn't clear about whether we start over with culture conversions in response to Bruce's question. We'll ask again when we see her.
He does have a couple more cultures growing, with one result due in about 2 weeks. Perhaps they will flip back to negative. The side effects of the Big 3 meds, Arikayce nebulizer, and all of the breathing therapies are taking a toll so it would be heartening to receive some positive news.
Thanks again for your response and the nice welcome.
Melissa

VIEW AND REPLY