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Low T-Cell - Bone Marrow Biopsy
Blood Cancers & Disorders | Last Active: Nov 15, 2022 | Replies (162)Comment receiving replies
Hi @loribmt,
I can't seem to find our last conversation š
I took your advice and rejected the new job. I am so grateful I did that. Thank you so so so much for your beautiful advice. I can't imagine myself starting a new job with my recent weeks.
My health has been absolutely awful lately. For the last 2-3 weeks I have had very bad dizziness, such as a feeling of falling in the floor and being "high". I had 2 panic attacks following the dizziness which almost brought me to the hospital. The feeling of dizziness remind me of the time I had a bad trip with Cannabis edible and brought me back to this state of mind of "I will be dying".
I did another gastroscopy which came back again with mild gastritis with no sign of infection. I am still waiting for my full genome sequencing to be completed with my family which has taken a year now. The infectiology team will talk about my case on Monday with the Head of the department to see if any other tests can be run on opportunistic infections. Also, I am supposed do another brain MRI on Monday but I am really debating just going to the Emergency department to run tests and maybe get the chance to see a rheumatologist as I am barely able to go out for a week. In the past, I did tests a bit everywhere because it's very hard to see a specialist in this good hospital if you are not in-patient.
I feel absolutely hopeless and depressed of this dizziness which just makes it unbearable. I still experience this tongue soreness, feeling of swollen salivary glands under the jaw, cough from the stomach, and feeling exhausted.
I just wanted to share my updates and hopefully, someone has maybe some similar case or opinion on what to do there. Emergency? Other tests?
I hope you are enjoying the spring with your family and that you are doing well xx
Maria
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Oh Maria, I feel so crushed for what youāre going through with no answers. Iām glad it was good advice with not taking the new job. In my heart I just felt it wasnāt the right time for you with not feeling well. Thatās one less stressor for you to take on at this point.
I know you had Covid and Iām wondering of some of your further complications, over and above what you were already going through, might be some long-haul Covid symptoms. There are numerous conversations in our Post-Covid recovery group regarding some of your current symptoms including the extreme dizziness. https://connect.mayoclinic.org/discussion/post-covid-dizzinessoff-balance-as-most-troubling-symptom/
Being dizzy is so disconcerting! Were you able to check with your doctor to see if this was an inner ear infection or a misalignment of inner ear crystals? https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-q-and-a-bppv-dizziness-caused-by-inner-ear-crystals/
My heart goes out to you, my friend. I wish you had a friend or relative living nearby to help you out. It has to be doubly frightening to go through these events alone. Panic attacks are just awful. I used to have them 30+ years ago and it really felt like it was going to be the end of me! I had bio-feedback sessions to help me learn to control the sensation when it came on.
Some good techniques now for panic attacks are to preempt them with this little tool.
When you feel overwhelmed, focus on:
5 things you can see: Your hands, the sky, an ant on the sidewalk
4 things you can physically feel: Your feet in your shoes, a pen in your hand, a breeze on your cheek, air in your throat when you inhale
3 things you can hear: The wind blowing, childrenās laughter, your breath
2 things you can smell: Fresh-cut grass, coffee, soap
1 thing you can taste: A mint, gum, a bite of chocolate
This will help refocus and redirect your anxiety. It works really well. I know longer have panic attacks but I still rely on this little too of 5 Things when faced with anxiety.
By the way, our last conversations appear right above this one in chronological order.
Maria, I hope you find some answers soon. If you feel going to the emergency department to get some immediate help and possibly see a rheumatologist can you help sooner, I encourage you to do what you feel is necessary to get help. In the US, your symptoms would be treated in the ER, but most likely nothing would happen on a weekend unless you were ill enough to admit. Things might be different where you are!
I also hope something positive comes out of the meeting on Monday when your case gets discussed with your team and the department head. It is reassuring to hear you are getting some continued and collaborative care. Youāre not being dismissed and they are taking your situation seriously. Iām sure this is equally perplexing to them!
Iām here anytime you need to have some moral support. Wish I could reach through the computer to give you a hug. Can you listen to some soothing music or an audio book while you rest?