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Want to talk about Multiple Myeloma: Anyone else?
Blood Cancers & Disorders | Last Active: Jul 1, 2023 | Replies (401)Comment receiving replies
My husband is an avid walker/biker too and he was never bored while in Rochester for our 4.5 month stay. The trail system is great along the Zumbro river, Bear Creek, walking through neighborhoods and parks.
It’s a medium sized city with so much geared to the Mayo community. Very easy access off the highway so there’s absolutely no big city-white knuckle driving.
As for being with you 24/7…well, in truth your husband will need to be tethered to you pretty closely, especially the first 2 weeks after your autologous transplant. In my own experience that first month for my allogenic transplant (not using my own cells) I wasn’t (and couldn’t be) on my own very much. But even then, if I was was feeling ok or napping, my husband felt confident in heading out for a good hour or so. Plus, as I’m sure you’ll be, we were linked with cell phones in case I needed him.
This isn’t a walk in the park for you, my dear, so he’s going to need to be a direct part of your transplant journey. This time will pass quickly and you’ll be back home soon enough.
I’m working on a post right now for transplant patients who need to be in Rochester for long term care. It includes lodging ideas, what to bring, how to plan. I’ll post it within the week and let you know. I think it will be very helpful to anyone facing longterm stays at Mayo.
Do you have any specific questions for me right now that I can address in my post??
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Just adding my two cents here. If you are not near the clinic for lodging they have shuttles that run to almost every hotel almost every hour during the day.
We drove so we had a car and used it, which was handy since my husband often had IV fluids into the evening. We absolutely loved townplace suites. They did a long term rate and we were very comfortable, having a full sized kitchen and being able to sit in another room from where he was resting was pretty great. They do put out a large spread for breakfast. It also was much lower priced than the places that were closer to the clinic, and it still only took 5 minutes to get there. We took the shuttle to learn the most direct route. Disclaimer, this was 10 years ago.
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@loribmt You're right, a care partner is important in any phase of a transplant.
@tml It's good you are getting ideas ahead of time, and thinking about your husband and how he will be handling the physical and emotional sides of his part in all this. Being mindful of and taking care of the care partner can be an easy thing to overlook in the busyness of it all!
Ginger