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@tml

I have a zoom appointment with social work on Tuesday. My husband is a bit depressed as was told it is a six week process which is longer than he thought. Guess doing everything at one time. So many questions but just the beginning so there is time. Thought he might be able to do some things there but as my caregiver guess pretty involved. Hope the Revlimid enough as this is my last set of doses.

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Replies to "I have a zoom appointment with social work on Tuesday. My husband is a bit depressed..."

Good morning, @tml, You and your husband have a lot to process with your good news of finally being able to get your stem cell transplant. It’s a bit overwhelming when you first hear the news and then trying to imagine the logistics of a 6 week stay away from home.
The adventure in Rochester will go by quickly and so much will be happening during that time. My stay was 4 months so I know the immediate reaction of ‘how are we going to make this work.” But it all comes together and your husband will be a very crucial part of your transplant and recovery.

For your husband, he’ll need to accompany you with most every appointment. There will be a few days when you’re in the hospital but most of the time you’ll be an out-patient and in your long term lodging. This will be your home away from home. However, he’ll also have a lot of free time and able to take in the sights and activities around Rochester. My husband put on several miles daily with walking the trails along the river, touring the city with it’s museums, historic sights, etc.

To get your thought process started, for lodging you’ll want to be very near the clinic. Most of the hotels in the immediate area of Mayo are connected via the tunnel (subway system) which is really convenient for your daily trips to the clinic.
If you opt for a hotel, such as the Marriott Residence Inn where we stayed, ask for a month lease, instead of paying by the day. That saves you from paying county room tax.

The social worker you’re meeting with Tuesday will provide you with a ton of useful information and you’ll get a packet in the mail to help with your planing. Don’t hesitate to ask her any questions, even after your meeting. That’s usually when we think of things! You’ll be able to send her messages via the patient portal.
I’m here and so are others to help you navigate this big life altering challenge ahead. Do you know if you’re going to fly to Rochester or will you be driving?