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Small Fiber Neuropathy

Neuropathy | Last Active: Oct 3, 2023 | Replies (213)

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@artscaping

Hi there Joy (if I can call you by your name?), I understand. It is frustrating. I guess you can wait on the skin biopsy........it is just that a confirmed diagnosis tells other medical entities and professional clinicians what they are dealing with in order to help you. You can have multiple punches, e.g. ankle, leg, etc. They are hardly invasive. It takes about 3 seconds and a small bandaid. As long as your neurologist is the only clinician you have and he treats you for SFN, you should be fine. However, if you want to seek help at another facility like Mayo Clinic, you will need the skin biopsy results. And if you want to take advantage of MFR or other therapies, your insurance may require confirmation of the diagnosis.

Now....let's focus on something else.......medical cannabis. Do you live in a state in which medical marijuana is legal? Have you had any experience with medical cannabis? I have managed to control my SFN pain and discomfort without any other pain medicine. I happen to be highly sensitive to medications so this is perfect for me.

I do have GAD.....general anxiety disorder as a result of my SFN and so I use Duloxetine (Cymbalta). Since anxiety creates pain and pain creates anxiety, this helps me avoid that whole merry-go-round.

I see that you are learning a lot from John Bishop about the supplements which help him tremendously.

We are here for you..........no questions or thoughts are ever unwelcome.

Chris

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Replies to "Hi there Joy (if I can call you by your name?), I understand. It is frustrating...."

Chris -
I had a sural nerve biopsy last year that confirmed I had PN and severe axonal nerve damage. I’ve never been told whether it is SFN. Would the sural nerve biopsy discover SFN, or is the skin punch biopsy a specific test for this? I ask because I finally get to see a new neurologist in our system in late June, and am getting my questions ready!
I’m sorry to hear of your Covid exposure after all you do to take care of yourself. It must be harder in our bodies given the challenges we face. But I’m glad you finally got to restart your SFN care and relief. Hugs!! I appreciate your help!

What a kind and sensitive reply. Thank you. He now has so many maladies, it’s just so hard to watch a once vibrant and strong man become so weakened. SFN is “just” one of the many things he’s facing. Feel helpless but am trying to give as much support and encouragement as I can. Meantime, I try to learn as much as I can.