Who else has Autonomic Neuropathy?

I live in Europe and I'm suffering SFN with neuropathic pain in both feet and hands and some autonomic stuff as night sweating, swollen blood vessel and some digestive issues, along with dried eyes and mouth.. Etc I've seeing a lot of specialists , many of whom suspect I have SFN but I have not still a diagnosis. Today at last I'm having a corneal confocal microscopy procedure. Does anyone know if this microscophe is enough to confirm this pathology?? How can I know it has an autoimmune origin?? What else can I do??I have also other autoimmune diseases such as hipotiroidism and gastritis... But they have discarded others..Im only taking lyrica and tryptizol and a lot of vitamines, but this thing is progressing. It started in my right leg 2 years ago, are there any more things to try on?? I'm getting bored.

Begin following a whole food plant based, low-fat diet. Have your vitamin B and D levels checked they’re usually low for people with autoimmune disease. B vitamins are needed to rebuild the nerve sheath. A synthetic B vitamin, NAC is scientifically proven to be better at rebuilding nerve sheath. Along with whatever type drugs the doctor gives you, try to heal your gut and microbiome by feeding it lots of green leafy vegetables.

Hi

Not B-6 correct

I’m not sure what you’re asking about B6? Here’s from online, “While vitamin B1 acts as a site-directed antioxidant, vitamin B6 balances nerve metabolism, and vitamin B12 maintains myelin sheaths.” I read that an artificial B vitamin called NAC was scientifically proven to work better than B vitamins. I couldn’t find NAC by itself in Walmart but, I found a product called Nervine that contains NAC which I began taking. I read mixed reviews about Nervine, some it did nothing for; others it took a few weeks but their neuropathy subsided. After I finished a 30 day supply the nerve pain was pretty much gone so, I didn’t buy more. Then my doctor gave me a B-12 vitamin shot. I was also taking a lot of other vitamins and began consuming copious amounts of leafy green veggies in smoothies, eating more salads and veggies, quit caffiene, sugar, etc. By the time that I got into the rheumatologist for my RA, the neuropathy was already gone.

My Neurologist told me that my neuropathy was caused by high level of B 6 in my system. That was 2 years ago. He took me off all supplements that contained B6. My B6 level dropped considerably after 6 month and stayed low. However my neuropathy is getting worse.

My Neurologist told me that my neuropathy was caused by high level of B 6 in my system. That was 2 years ago. He took me off all supplements that contained B6. My B6 level dropped considerably after 6 month and stayed low. However my neuropathy is getting worse.

I have been diagnosed with Small Fiber Polyneuropathy after 12 years of issues. I also have autonomic dysfunction that affects my digestive, heart and bladder. I take pregabalin and duloxitine for the neuropathy, heart and blood pressure meds for the heart issue (tachnycardia) and probiotics for my digestive issues with Reglan if needed for nausau. I have found this to be a very long road with many dead ends until I was finaly diagnosed after having autonomic testing in Boston by Dr. Peter Novak. I was told while I was there that Dr. Novak travels the world to find answers and best practices for autonomic neuropathy issues so I am one of his patients now. I have also been tested for several autoimmunes and everything under the sun with no clear answers.

@gregoria Hello. I was diagnosed with small fiber neuropathy by a skin punch biopsy. I’ve been tested for other autoimmune diseases as my doctor is trying to find an underlying cause to the SFN. I was just tested for Sjögren’s syndrome (pending results) as it can cause SFN. Some of the symptoms you’re experiencing (dry eyes/mouth) are classic symptoms of Sjögren’s syndrome. If they can find the underlying cause to your SFN, they can treat that, which could potentially improve your SFN symptoms. I hope you find answers. ~Robyn

What doctor test for those things? small fiber neuropathy