Thank you for your comments on Post ICU Syndrome. There may or may not be an element of it, although unlikely as my ICU stay was only a day and I was extubated the night of transplant surgery. We did struggle with hyperglycemia first two weeks post op. and used steroids per protocol. As for pre procedure personality traits, there was no anxiety or depression being a senior surgeon well familiar with the surgery and hospital environment.
The vivid nightmares with night sweats, delusions, and less frequent hallucinations continue. Symptoms wax and wane at times but never resolve. Seem to correlate with Tacrolimus levels at times.
?High Tacrolimus?=?Increased symptoms. Tacrolimus crosses the blood brain barrier hence may be a side effect albeit not a well known one. I have also noted at times, a correlation of symptoms with a full bladder but not always. Worse symptoms once when Tacrolimus levels had gone up to 15.
We have considered the extended release Tacrolimus preparation thinking symptoms may be timed to Tacrolimus peak, but they occur at different times of the night and days as well when I take a nap. Thanks again for the comments.