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Want to talk about Multiple Myeloma: Anyone else?
Blood Cancers & Disorders | Last Active: Jul 1, 2023 | Replies (401)Comment receiving replies
Mrs. Oakley, your post has given given me so much hope to know that MM can be managed for years. I know it has not been easy for your husband or you but, he’s still here after 12 years. She’s on the treat for 3-4 months and she’ll get assessment in a few weeks about transplant options. We don’t know what that means yet for her treatment or disease. Is this the normal next step.? Does chemo get her to remission without transplant? How is your husband’s quality of life through all of this. Is he able to continue to do some of the things that he normally enjoys? How did he tolerate revlimid? I seen some challenges with this drug. Would you send the link for the IMF that you mentioned.
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Congratulations on your long myeloma survivals. I am a 30 year myeloma survivor. My short YouTube lessons learned by my caregiver and me are at https://youtube.com/channel/UCqLcRQUKliWxNh_4avhBysg
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Thank you for such nice comments! I am so very happy that you are feeling hopeful, there is much to be hopeful about. I honestly can say that there are so many new treatments that I am not sure if the standard treatment of care is still transplant. Is your sister seeing a doctor at Mayo for assessment? I think remission comes and gos with the majority of folks but I think transplant started him off right, I am really glad we went to Rochester for that. The folks really knew what to expect and were prepared for the issues. There are scores of treatments now, there was only velcade, revlomid and dex to treat with when he was diagnosed.
The IMF is an amazing place to learn, here is the link.
https://www.myeloma.org/
My husband still has a pretty good quality of life but no physical things anymore. Anything pushing, pulling, or lifting is my job now.
What kind of challenges is your sister having with revlomid?