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Positive PEth in a non-drinker
Transplants | Last Active: Sep 26, 2023 | Replies (35)Comment receiving replies
He is having symptoms, extreme fatigue, not sleeping well at night and HE, which is decently under control with medications, unless he has procedures where is he put to sleep. He has a lung nodule removed in February and had a severe HE episode after that. He also has two small tumors on his liver that will be treated with Y-90 next week. The PEth test was administered in preparation for the transplant team - he has had numerous repeat test and they always come back high PEth. This is something we could not have never dreamed we would be going through since he is a non-drinker.
Was your kidney transplant done at the same time as your liver transplant? How long are you post transplant?
Thank you for reaching out to me!
Replies to "He is having symptoms, extreme fatigue, not sleeping well at night and HE, which is decently..."
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@kpm, I'm sorry that I've been delayed in responding. I was "away" at Mayo Rochester for my annual transplant evaluation. I got my transplant 13 years ago. I had a liver and a kidney transplant at the same time. The procedure is called a simultaneous transplant (one deceased donor, one surgery, 2 organs) My liver failure was due to Primary Sclerosing Cholangitis and the kidney was due to acute hepatorenal failure. I completely understand what you mean by saying that this is something that you never dreamed you would be going through. Me and my husband felt the same way. As my health failed, my husband had to take on more and more of my care, and he was able to be with me, at my side through the entire experience. He was my strength. and still is.
In our last conversation, you shared that your husband was going thru the pre-transplant evaluation and that he would be having Y-90 for small liver tumors. How did that go for him? Is it a one time treatment/procedure or a series of treatments? What is the next step?