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HCM-ers: Introduce yourself or just say hi

Hypertrophic Cardiomyopathy (HCM) | Last Active: Nov 28 11:57am | Replies (877)
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@amandaa

Hi @manning2000 and welcome to Mayo Clinic Connect.
I'd like to invite @yorlik to say hi to you as they had the procedure and feel it may not be right for them either.

I encourage you to read this article in one of the heart journals, "TAVR: Miracle for Some, but No Improvements in Quality of Life for Others," https://www.tctmd.com/news/tavr-miracle-some-no-improvements-quality-life-others

Do you know why they suggested the TAVR in the first place?

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Replies to "Hi @manning2000 and welcome to Mayo Clinic Connect. I'd like to invite @yorlik to say hi..."
KEITH | @manning2000 | May 29, 2023

Severe aortic ———-? Changed after TAVR procedure to HCM. ON CAMYZOS for 5 months. No improvement. Went to Emergency Room at hospital. Stayed there 8 days. New Dr. - new meds. 2 lifters of fluid drained from stomach. Lost 30 lbs. on Hospt. food. Took radiological tests at another Hospt. - diagnosed with Amylodosis. On new drug - Vyndamax. I get very tired just walking in house. Average BP is 110/68 - 78. On no salt-low sugar diet to keep weight down. Can’t get enough blood flow to do more.

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