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Anyone else have Mantle Cell Lymphoma?

Blood Cancers & Disorders | Last Active: Jul 14 6:52am | Replies (89)

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@nhlbob

Understood. So we were diagnosed by different methods. My post-op lymph node ressection has not been fun. Fives weeks out and it still hasn't completely healed.

Regarding "watch and wait," at Stage 1 it sounds like you have time and that would be an appropriate option. With mine at stage 2 but no spread and appearing indolent, it's been suggested that it could be an option for me as well. I listened to an online seminar where a lymphoma specialist, Dr. Lauren Pinter-Brown, stated that "lymphoma may not and does not have to naturally progress from one stage to another." So I'm really really struggling with whether to begin treatment for my Stage 2 as my oncologist in Bangkok is recommending, or watch and wait as two other lymphoma experts in the US had suggested I might be able to do. It's stressing me out which I realize isn't good for my disease.

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Replies to "Understood. So we were diagnosed by different methods. My post-op lymph node ressection has not been..."

I would go with "watch and wait". You could have your blood tested every month for any changes. The disease and the treatments both scare me.

Hi @nhlbob, it’s been a while since we’ve chatted and I’ve been wondering where you are on treatment. I know you were struggling with water or not to stay in Bangkok or head to the US. Did you make any decision about that and the treatment options?