Dismissing doctors: How do you find a doctor who can help?

Posted by mahenoor108 @mahenoor108, Mar 28, 2022

I have had chronic pain since 10 plus years, I’m 34 now a mother to a 4 year old and life is getting harder day by day
Ana titer positive
D dimer high
All autoimmune panels negative
No other signs of inflammation
But when doctors examine they can feel the muscles are stiff, contracted, rigid.
They think it’s fibromyalgia but nothing has helped me. Since the past 6 years I’ve been on different medicine, therapies everything.
Every other month a new symptom appears and now I don’t know what to do.
Left thigh is the oldest problem, I have sore rigid muscles and I don’t even know what relaxed muscles feel like.
Some doctors think it’s some autoimmune but are unsure.
My new symptoms in the last 2 months
Extreme anxiety/over eating a lot due to anxiety
Insomnia very recent cannot sleep at all
Contracted muscles/ rigid muscles all the time unintentionally I try to realease as soon as I realize they are contracted
Forgetfulness - forgotten a lot of important times of my school/college life
Brain fog
Sleep talking very recent
Pain in my left knee
As soon as I wake up an put my feet on the ground they feel extremely sore.
My neck is tilted to the left side all the time because of extreme pain
In the past I have had high crp
But not anymore.
Can someone please help me.
I can’t function most days

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@susanop

I have psoriasis and a positive ANA and have suffered from tight, contracted muscles and pain for years. The worst part for me is the tight trapezius muscles in my shoulders, which were giving me severe headaches 2-3 times a week. I’m a plant based very fit person, and it’s been very frustrating and has definitely affected my quality of life. I still don’t know what is causing the pain - my rheumatologist has done a lot of tests but we’re still chasing a diagnosis. My suggestion is not a cure but it has really helped with the pain to the point that it is no longer much of an issue. A few months ago I began adding a big piece of fresh ginger root, peeled and sliced to my morning smoothie (kale, frozen pineapple and mango and banana and flax and hemp seeds). It was about a week before. I realized I wasn’t having any muscle pain or headaches and just figured that, for some reason, it had subsided for the time being. Then I saw an article about ginger root being a good pain reliever and migraine preventative in the news and a lightbulb went off in my head. I now make a point of adding the ginger root to my smoothie daily and use more if I feel a pain flare or headache coming on. It has changed my life — no more muscle pain and no more stomach pain and upset from too many NSAIDS. Hopefully this will help someone out there — my pain had been chronic for years before this and even narcotic pain relievers didn’t work. I’m happy and relieved and surprised that something so simple and without side affects has helped me and wanted to share with all of you. If you are interested in learning more, Dr. Neal Barnard has a book that I subsequently purchased called “Foods That Fight Pain.” It has quite a bit of interesting info on the pain relieving attributes of many foods. Who knew? Of course it doesn’t get studied extensively because there’s no profit in it for Big Pharma!

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I love to hear things that help and are not opioid or NSAID. Interesting that you found ginger root helpful. I make an anti-inflammatory oil blend to help, and ginger is among the ingredients.

Also, ginger is a long-time remedy for stomach woes. Ginger tea, either fresh root or dried, was my salvation during a long course of antibiotic therapy. Did you know that you can grow your own? (https://www.masterclass.com/articles/how-to-grow-ginger#how-to-harvest-ginger)

Sue

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@susanop

I have psoriasis and a positive ANA and have suffered from tight, contracted muscles and pain for years. The worst part for me is the tight trapezius muscles in my shoulders, which were giving me severe headaches 2-3 times a week. I’m a plant based very fit person, and it’s been very frustrating and has definitely affected my quality of life. I still don’t know what is causing the pain - my rheumatologist has done a lot of tests but we’re still chasing a diagnosis. My suggestion is not a cure but it has really helped with the pain to the point that it is no longer much of an issue. A few months ago I began adding a big piece of fresh ginger root, peeled and sliced to my morning smoothie (kale, frozen pineapple and mango and banana and flax and hemp seeds). It was about a week before. I realized I wasn’t having any muscle pain or headaches and just figured that, for some reason, it had subsided for the time being. Then I saw an article about ginger root being a good pain reliever and migraine preventative in the news and a lightbulb went off in my head. I now make a point of adding the ginger root to my smoothie daily and use more if I feel a pain flare or headache coming on. It has changed my life — no more muscle pain and no more stomach pain and upset from too many NSAIDS. Hopefully this will help someone out there — my pain had been chronic for years before this and even narcotic pain relievers didn’t work. I’m happy and relieved and surprised that something so simple and without side affects has helped me and wanted to share with all of you. If you are interested in learning more, Dr. Neal Barnard has a book that I subsequently purchased called “Foods That Fight Pain.” It has quite a bit of interesting info on the pain relieving attributes of many foods. Who knew? Of course it doesn’t get studied extensively because there’s no profit in it for Big Pharma!

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@susanop @sueinmn I am always on the lookout for remedies people have used that works for them! Good information to tuck in the back of my mind. And, yes, I recall using ginger tea or ginger chews for digestive upsets. That along with grapefruit juice, which I can no longer have, sad to say.
Ginger

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@sueinmn

My daughter is an ER nurse, was a paramedic and 911 dispatcher before that. She says that depends entirely on the hospital. That said, we had occasion last fall to make numerous ER trips, for myself & my daughter, and it was definitely NOT true then. Paramedics were seen several times transferring patients from gurney to wheelchair and placing them in the ER waiting room with the rest of us. The same happened when I took my husband to the ER in Texas this winter. I asked one triage nurse, and she said "non-emergency" patients were using it to try to jump to the head of the line and their medical director put a stop to it. So, it may have once been true, maybe still is in some places, but not so much these days.

Also, insurance companies have been known to decline to pay for the ambulance if, in their judgment, it was not medically necessary.

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I live in the Milwaukee WI area and I’ve been to the ER several times recently. You aren’t put in a waiting room.

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@susanop

I have psoriasis and a positive ANA and have suffered from tight, contracted muscles and pain for years. The worst part for me is the tight trapezius muscles in my shoulders, which were giving me severe headaches 2-3 times a week. I’m a plant based very fit person, and it’s been very frustrating and has definitely affected my quality of life. I still don’t know what is causing the pain - my rheumatologist has done a lot of tests but we’re still chasing a diagnosis. My suggestion is not a cure but it has really helped with the pain to the point that it is no longer much of an issue. A few months ago I began adding a big piece of fresh ginger root, peeled and sliced to my morning smoothie (kale, frozen pineapple and mango and banana and flax and hemp seeds). It was about a week before. I realized I wasn’t having any muscle pain or headaches and just figured that, for some reason, it had subsided for the time being. Then I saw an article about ginger root being a good pain reliever and migraine preventative in the news and a lightbulb went off in my head. I now make a point of adding the ginger root to my smoothie daily and use more if I feel a pain flare or headache coming on. It has changed my life — no more muscle pain and no more stomach pain and upset from too many NSAIDS. Hopefully this will help someone out there — my pain had been chronic for years before this and even narcotic pain relievers didn’t work. I’m happy and relieved and surprised that something so simple and without side affects has helped me and wanted to share with all of you. If you are interested in learning more, Dr. Neal Barnard has a book that I subsequently purchased called “Foods That Fight Pain.” It has quite a bit of interesting info on the pain relieving attributes of many foods. Who knew? Of course it doesn’t get studied extensively because there’s no profit in it for Big Pharma!

Jump to this post

I belong to an herb society and one member had a huge pot of ginger that had overgrown the large tub it was in. She told us about taking it all apart and transplanting the plants in individual containers one afternoon. And realized, several days later, that the arthritis in her hands hadn't hurt since that afternoon. Ginger is thought to be anti-inflammatory for some conditions but she never gave it a thought until that experience of being pain-free with no othet likely explanation.

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GOD HELP YOU...I FEEL THE SAME..dont know what to do..SOMEONE SUGGESTED QUININE WATER THAT IS SUPPOSED TO HELP...I will try that...and take MY GABAPENTIN AND MOTRIN AT NIGHT ..cannot sleep, appetite gone, am losing weight which I need anyway. INSULIN AND GLUCOPHAGE TWICE A DAY...COLLAGEN once (supposed to help)...............I am almost 78

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I’m sorry to know you are in such pain. Doctor’s aside, that’s a discussion for another time, you might find relief if you are able to find someone certified in myofacsial release. Make sure they are certified. Good luck to you.

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Ask your regular physician to refer you to a neurologist. That doctor can check for other diagnosis, like neuropathy or possible neurological reasons for your pain. Don't give up, a good neurologist could help you.

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Someone may have suggested this before but let me reiterate you have got to find a pain management doctor. They are usually affiliated with a medical center but not always. I cannot tell you how they have saved my life….painwise….Please ask your Drs about how to find one or just Google Pain Management Doctors. It will be life altering…I promise!!! I’m not talking about taking pills….They have many modern alternatives!!!

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@daliea

I am sorry to hear your frustration with doctors.I think most of us with chronic pain go through the same long process of getting the proper diagnosis.In my seventy two years I have had many doctors that really disappointed me in their indifference and a few that were excellent.Right now I am in the indifference category LOL , but I have my first appointment coming up with Physiatry and hopefully some answers.Don’t give up, I have become discouraged by doctors too many times which only made me depressed.Then I have to pick myself up and pick up the phone and Google some doctor and start all over again until I have answers. I know just like you know that something has gone terribly wrong.

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I have gone through the same thing. Health care has been disappointing. Treatment has been about replacing parts so your only option is to get another part when that part wears out. Some doctors are speaking of regeneration but not advanced enough-what have they been doing-I guess they have been satisfied because they are getting enough money.
KEEP GOING

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