Dismissing doctors: How do you find a doctor who can help?
I have had chronic pain since 10 plus years, I’m 34 now a mother to a 4 year old and life is getting harder day by day
Ana titer positive
D dimer high
All autoimmune panels negative
No other signs of inflammation
But when doctors examine they can feel the muscles are stiff, contracted, rigid.
They think it’s fibromyalgia but nothing has helped me. Since the past 6 years I’ve been on different medicine, therapies everything.
Every other month a new symptom appears and now I don’t know what to do.
Left thigh is the oldest problem, I have sore rigid muscles and I don’t even know what relaxed muscles feel like.
Some doctors think it’s some autoimmune but are unsure.
My new symptoms in the last 2 months
Extreme anxiety/over eating a lot due to anxiety
Insomnia very recent cannot sleep at all
Contracted muscles/ rigid muscles all the time unintentionally I try to realease as soon as I realize they are contracted
Forgetfulness - forgotten a lot of important times of my school/college life
Brain fog
Sleep talking very recent
Pain in my left knee
As soon as I wake up an put my feet on the ground they feel extremely sore.
My neck is tilted to the left side all the time because of extreme pain
In the past I have had high crp
But not anymore.
Can someone please help me.
I can’t function most days
Interested in more discussions like this? Go to the Bones, Joints & Muscles Support Group.
I love to hear things that help and are not opioid or NSAID. Interesting that you found ginger root helpful. I make an anti-inflammatory oil blend to help, and ginger is among the ingredients.
Also, ginger is a long-time remedy for stomach woes. Ginger tea, either fresh root or dried, was my salvation during a long course of antibiotic therapy. Did you know that you can grow your own? (https://www.masterclass.com/articles/how-to-grow-ginger#how-to-harvest-ginger)
Sue
@susanop @sueinmn I am always on the lookout for remedies people have used that works for them! Good information to tuck in the back of my mind. And, yes, I recall using ginger tea or ginger chews for digestive upsets. That along with grapefruit juice, which I can no longer have, sad to say.
Ginger
I live in the Milwaukee WI area and I’ve been to the ER several times recently. You aren’t put in a waiting room.
I belong to an herb society and one member had a huge pot of ginger that had overgrown the large tub it was in. She told us about taking it all apart and transplanting the plants in individual containers one afternoon. And realized, several days later, that the arthritis in her hands hadn't hurt since that afternoon. Ginger is thought to be anti-inflammatory for some conditions but she never gave it a thought until that experience of being pain-free with no othet likely explanation.
This is so interesting!
GOD HELP YOU...I FEEL THE SAME..dont know what to do..SOMEONE SUGGESTED QUININE WATER THAT IS SUPPOSED TO HELP...I will try that...and take MY GABAPENTIN AND MOTRIN AT NIGHT ..cannot sleep, appetite gone, am losing weight which I need anyway. INSULIN AND GLUCOPHAGE TWICE A DAY...COLLAGEN once (supposed to help)...............I am almost 78
I’m sorry to know you are in such pain. Doctor’s aside, that’s a discussion for another time, you might find relief if you are able to find someone certified in myofacsial release. Make sure they are certified. Good luck to you.
Ask your regular physician to refer you to a neurologist. That doctor can check for other diagnosis, like neuropathy or possible neurological reasons for your pain. Don't give up, a good neurologist could help you.
Someone may have suggested this before but let me reiterate you have got to find a pain management doctor. They are usually affiliated with a medical center but not always. I cannot tell you how they have saved my life….painwise….Please ask your Drs about how to find one or just Google Pain Management Doctors. It will be life altering…I promise!!! I’m not talking about taking pills….They have many modern alternatives!!!
I have gone through the same thing. Health care has been disappointing. Treatment has been about replacing parts so your only option is to get another part when that part wears out. Some doctors are speaking of regeneration but not advanced enough-what have they been doing-I guess they have been satisfied because they are getting enough money.
KEEP GOING