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Non-Mayo Pulmonologist Recommendation

Lung Health | Last Active: May 19, 2022 | Replies (12)

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@colleenyoung

@brglassman, I'm wondering if you might check the information you were given about being followed by a pulmonologist at Mayo Clinic Jacksonville. Or perhaps I'm not understanding your message correctly. You said, "I was told that the entire pulmonology department at Mayo clinic in Jacksonville is comprised of Interventional pulmonologist and patients are not followed by the Mayo Clinic Pulmonology Department in Jacksonville."

You're correct that the pulmonary team includes a interventional pulmonologist as well as pulmonologist experts and fellows who follow lung patients. I might suggest calling back to get clarification or talking with someone from the Office of Patient Experience.

I completely understand your desire to have all your health care needs followed at Mayo, in one system. Are you currently a patient in pulmonology?

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Replies to "@brglassman, I'm wondering if you might check the information you were given about being followed by..."

@colleenyoung The attached picture is the portal message that I received from the nurse for the Mayo Clinic Interventional Pulmonologist that diagnosed my Excessive Central Airway Collapse (ECAC). The nurse is telling me to establish a relationship with a community Pulmonologist because Mayo Clinic pulmonologists only consult, not follow. I'm assuming that the nurse, a BSN, RN, AMB-BC, knows what she is talking about.

As for whether I'm CURRENTLY a patient in Pulmonology, I don't know. Pulmonology has "consulted" so does that mean that they're done with me. It appears that the doctor that diagnosed my Excessive Central Airway Collapse (ECAC) is done with me as he has made a diagnosis and recommended that I see a Thoracic surgeon.

It's a slippery slope when Mayo Clinic starts telling patients to get treatment outside the Mayo Clinic system for things that Mayo Clinic can handle. Once patients go outside the Mayo Clinic system they are introduced to other healthcare systems, systems that may work better for patients who want to have all of their care in one place. Maybe I just need to move on to Baptist, St. Vincent's, or UF Health.

My experience with Mayo Clinic is that it depends on the health issue. Issues requiring ordinary follow-up are encouraged to be done locally while complex health conditions utilizing Mayo expertise are followed by Mayo. Mayo Clinic is a research institution and teaching hospital. If they did routine follow-up, they would not have the ability to see as many patients. They see patients from many faraway places, so local follow-up is the norm I expect