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Bertolotti's Syndrome: Looking for a specialist

Spine Health | Last Active: Jan 18 9:10pm | Replies (48)
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@kel18

My mother is struggling with terrible back pain. It is affecting every aspect of her daily life. She has had horrible back pain for over a year now and no one has been able to help her. Her last X-ray showed they think it is bertolotti syndrome. We are looking for a specialist in Michigan. If anyone has any information that would be helpful I would appreciate it.

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Replies to "My mother is struggling with terrible back pain. It is affecting every aspect of her daily..."
Teresa, Volunteer Mentor | @hopeful33250 | May 10, 2022

Hello @kel18 and welcome to Mayo Clinic Connect. First of all, thank you for advocating on behalf of your mom. It is important as we get older to have someone helping us.

I'm sorry to hear of her back pain. I can understand what you mean when you say, "It is affecting every aspect of her daily life." Back pain certainly does that!

I see that you are from Michigan (as am I). I'm not sure where in Michigan you live, but since this is an underdiagnosed disorder you might want to check for a doctor who is part of a large medical system.

My first thought would be to contact the University of Michigan and ask if they have a specialist there who could evaluate your mom's problem. If you do not live near U of M I would recommend that you search for another large medical facility that is research-oriented and uses a multidisciplinary approach to treating patients.

Has your mom had other diagnostic workups such as an MRI? What type of specialist is she seeing now?

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