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DiscussionNewbie MAC caregiver with questions
MAC & Bronchiectasis | Last Active: Jul 23 8:34am | Replies (29)Comment receiving replies
Replies to "Thank you, thank you, for the thoughtful advice and the virtual pat on the back. Both..."
Melissa - Thank You for providing me with an idea of what it must have been like for my husband when I was being treated for MAC. I too had coughing, profound fatigue, no appetite, weight loss, altered sense of taste...
A few of the things that helped my recovery were a water glass always at hand, no matter where I sat, tiny, nutritious snacks/meals every hour throughout the day, and protein drinks and smoothies.
Something else I learned was that before nebbing and airway clearance to walk a little - in the yard, down the block or even in the house it seemed to help move the mucus.
Another was to walk every day for a little while no matter how awful I felt - like Bruce I had always been a walker. At first it was only around the yard once, sit for a while and do it again. I gradually worked up to one mile, then two over a period of many weeks. This actually lifted my depression better than anything, even though I often needed a nap when I got home.
Caregiving is also a tough job. Have you found one small thing you can do for yourself each day to make things go more smoothly?
I wish you both an easier road as you go forward.
Sue