Connect
← Return to This and That and Talk - My Transplant
Discussion
This and That and Talk - My Transplant
Transplants | Last Active: Aug 14 9:57pm | Replies (1677)Comment receiving replies
Parrot53.
I walked around with cirrochis for quite some time..years ..blood test were not normal when it came to all liver tests
Dr. Kept saying. Oh well we will repeat in a few months..I did .same results..same response.
Symptoms got worse:itchy rashes: purple marks like bruises.dr. said that's from old age!! Swollen belly ..swollen feet.dr.said wear compression stockings! My gastro dr.put it all together after looking at my blood tests and sent me MRI. It came back cirrhosis and a tumor in liver.Now at Mt.Sinai Jan 4 2020.test.test.then Feb. My first ablation
Called Y90. It worked but then another...2nd micro blast but by now on transplant list.call came that October.i still want to ........that doctor.
Replies to "Parrot53. I walked around with cirrochis for quite some time..years ..blood test were not normal when..."
I'm finding more similarities with more people...how are any of you dealing with eating issues? I'm hungry but eating my food is unpleasant as with no salt, its basically tasteless. My husband works so hard to rectify this but I'm just going through the motion of eating and not enjoying any of it. I've become so picky that I've told him that I'll be satisfied with just our smoothie as they are rich in good foods and I can taste them. I do have issue with a metal taste in my mouth and suck on cough drops to endure it. And what is ablation? Thanks y'all.
Connect
Oh man, sometimes I think male docs don’t get us women at all. They don’t realize we are not making things up. So sorry you had such a bad experience. I found my Hep c in 1996 when donating blood for my grandson. Went to a gastro who was good and got me into clinical trials for hep c. No cure at that Ike. When I finally could afford treatment it was 2019. Too late to reverse the damage done to my liver. Just had to wait for the cure and am now dealing with the long term effects of Hep c and cirrhosis/ HCC. Mayo in Jacksonville is wonderful and I am getting great care. They have been monitoring this tumor for two years now it is finally UNOS qualified for transplant. Still hoping I won’t need one, but prepared to take my doc’s advice.
So glad you finally got to the right doc. What a difference it makes. I wish you the very best and hope your journey is finally headed in the right direction. Mt. Sinai is a good place to be.