Connect
← Return to Newbie MAC caregiver with questions
Discussion
Newbie MAC caregiver with questions
MAC & Bronchiectasis | Last Active: Jul 23 8:34am | Replies (29)Comment receiving replies
@melissa08... It is no wonder you are feeling discouraged. Success didn't lead to hurrahs and "let's stop this awful regimen". This group is the place for you!
I had MAC and lost one lung lobe completely. No surgery to remove since I am "too old" at over 70. I got rid of MAC and got off the Big 3 after 14 months. However, I had copious amounts of mucous and shortness of breath. Candida caused the excess mucous and I got rid of it with "Candida Cleanse herbal treatments in 6 months. My doctor was amazed. Taking antibiotics for so long causes new problems, often candida.
I also have asthma and nebulize 2 times a day. Postural drainage once a day has made a big difference in getting the mucous out. See You tube for ideas on positions based on where your infections are located.
I have GERD which is a major contributor to mucous and asthma. I have found that clear Ensure nutrition drink goes down well when nothing else is appealing. Once the fluids are up, the appetite often comes back.
Now, we want you to take care of yourself while taking care of Bruce. Do something you enjoy. If you are too discouraged to think of something, we'll have many ideas,
Replies to "@melissa08... It is no wonder you are feeling discouraged. Success didn't lead to hurrahs and "let's..."
I am interested to learn more about the excess mucus and affect of GERD and Asthma on same, if you do not mind?
Noone seems to be able to explain my 7oz mucus production most times I neb.
But I was diagnosed with asthma although I am largely unaware of it...when taking Symbicort for years I didn't notice an improvement...now I am being asked to go back on it.
Severe gastritis and reflux also diagnosed...now sleeping on a wedge pillow and trying to elevate.
Any information would be appreciated. Thank you.
Connect
Thank you, thank you, for the thoughtful advice and the virtual pat on the back. Both are greatly appreciated. Getting Bruce to take in enough fluids is an issue, not surprisingly since he feels like he is underwater most days with the amount of sputum he brings up, sometimes with very few breaks.
Managing MAC is challenging. Finding this discussion group and reading the stories and recommendations feels like our own personal tunnel will get shorter and the road less bumpy.