← Return to I was recently diagnosed with LBD with Parkinsonism: Any advice?

Discussion
Comment receiving replies
@pcacare

Thanks for the great posts by you and @wanieta. My 75 yr old husband, Vietnam veteran/Agent Orange exposure is diagnosed with Parkinsonism associated with Posterior Cortical atrophy (PCA) and Corticobasal syndrome (CBD). He lost reading abilities 2-3 years ago with memory decline, followed by left side weakness and an almost lifeless arm. He can no longer enjoy daily dog walking, has had a few falls but is riding Air-dyne bike here for strength. Neurologist increased Donepezil from 10 mg to 20 mg recently. Movement disorder neuro agreed he could try Carbidopa Levodopa, started with half pill. This has reduced aching and icy cold feeling in his arm but not much change to arm and leg mobility or balance. I found good Neuro PT who used a bit of boxing in the routine ! It has been a journey to advocate and find best care for him. Frustrating that Doctors say there are no supplements, or alternative therapies. His daily Statins have not been questioned by Doctors at all. He has been very healthy eater for years with exception of nightly ice cream treat. Clinical trials ?…I wish I could find one ! Asking what is an integrative physician. Every day I wonder what more can I do. Thanks and strength to all

Jump to this post


Replies to "Thanks for the great posts by you and @wanieta. My 75 yr old husband, Vietnam veteran/Agent..."

Hello @pcacare and welcome to Mayo Clinic Connect. Your husband's health situation does sound complicated and difficult to deal with. I'm glad to hear that he is getting some relief from some of his symptoms with the Carbidopa-Levodopa.

I do admire you for all the work you are doing on his behalf. It is so important to have an advocate when you are ill.

Your husband's exercise routine and seeing a Neuro PT are excellent. We have other members on Connect who also have Parkinson's as a result of Agent Orange exposure, I would like to invite, @johnjames and @ggopher, who are also veterans exposed to Agent Orange.

What is the most difficult symptom you would like to have medical help with right now?