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MALT Lymphoma of the bladder and trouble with pain control
Blood Cancers & Disorders | Last Active: Jul 6, 2022 | Replies (9)Comment receiving replies
I am so sorry you are experiencing such misery. My husband had bladder cancer but had little pain with it, a different type than yours. My experience with head and neck cancer and radiation included oral pain after radiation. Dexamethasone was helpful in quieting the inflammation. My experience as a veterinarian says that your long term pain has been "amped up" by your nervous system, as chronic pain seems to sensitize nerves to increase the pain sensations. If the steroid and hydro do not relieve you enough, I would recommend a pain management specialist who may use things like a TENS unit or drugs like Gabapentin or Amantadine to help block the pain signals. Keep seeking out the experts until you get relief. I am sure Mayo has an excellent Pain Management team. Good luck .
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Thank you very much for your suggestions and for just taking the time to write.....this experience can be very isolating. I sometimes feel so sick of myself that I'm sure that friends feel the same.
MALT Lymphoma that is confined to the bladder is very rare, and as such, there are not many proven protocols to draw upon. It's considered an indolent cancer, so at 61 I was quite sure I wouldn't deal with it at all....except for the unrelenting pain. I have taken my first dose of Dexamethasone and one hydomorphone and have found some relief. I do take note of your comment about the nervous system being amped up and super reactive after all this time and I'm in agreement. I'm hopeful that the steroids and the proper pain medication will set me on the right track and give me room to pursue a lasting solution.