← Return to MALT Lymphoma of the bladder and trouble with pain control

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@atschirley

thank you for your help. I contacted my radiation oncologist on Monday and he called in some prescriptions on Wednesday which will be ready on Friday. so I just have to bear it until then. the medications are dexamethasone and hydromorphone, neither of which I've ever taken.....I'm pinning my hopes on these two in combination to provide some relief. I've never felt so miserable.
The problem was diagnosed in the bladder, but the pain has been going on for so long, that now the whole pelvis seems involved and there isn't even language to describe it anymore. Pain much worse since biopsy on 9-21, worse still after 4-22 radiation.

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Replies to "thank you for your help. I contacted my radiation oncologist on Monday and he called in..."

I am so sorry you are experiencing such misery. My husband had bladder cancer but had little pain with it, a different type than yours. My experience with head and neck cancer and radiation included oral pain after radiation. Dexamethasone was helpful in quieting the inflammation. My experience as a veterinarian says that your long term pain has been "amped up" by your nervous system, as chronic pain seems to sensitize nerves to increase the pain sensations. If the steroid and hydro do not relieve you enough, I would recommend a pain management specialist who may use things like a TENS unit or drugs like Gabapentin or Amantadine to help block the pain signals. Keep seeking out the experts until you get relief. I am sure Mayo has an excellent Pain Management team. Good luck .