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MALT Lymphoma of the bladder and trouble with pain control
Blood Cancers & Disorders | Last Active: Jul 6, 2022 | Replies (9)Comment receiving replies
Hi @atschirley Adele. Welcome.
I moved your questions to the Blood Cancers group (https://connect.mayoclinic.org/group/blood-cancers-disorders/) and the Cancer: Managing Symptoms group (https://connect.mayoclinic.org/group/cancer-managing-symptoms/) so connect you with other members like @jjohnson8747 @caringwife @sepdvm @sue225 and @grandpabob. I'm hoping that they may have some suggestions for managing the pain.
Adele, have you written to your cancer team through the Mayo Clinic patient portal? A symptom management nurse may be able to offer pain management medications or strategies to help. Is the pain specific to the bladder and urinary tract? Can you describe it?
Replies to "Hi @atschirley Adele. Welcome. I moved your questions to the Blood Cancers group (https://connect.mayoclinic.org/group/blood-cancers-disorders/) and the..."
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thank you for your help. I contacted my radiation oncologist on Monday and he called in some prescriptions on Wednesday which will be ready on Friday. so I just have to bear it until then. the medications are dexamethasone and hydromorphone, neither of which I've ever taken.....I'm pinning my hopes on these two in combination to provide some relief. I've never felt so miserable.
The problem was diagnosed in the bladder, but the pain has been going on for so long, that now the whole pelvis seems involved and there isn't even language to describe it anymore. Pain much worse since biopsy on 9-21, worse still after 4-22 radiation.