Hi Lori - thank you so much for the reply and links. I just received the PET and bone marrow biopsy results today. The PET showed the lymphoma has not spread to any other part of my body, and the bone marrow biopsy showed it has not spread to the bone marrow. The oncologist said the lymphoma was isolated to the right inguinal lymph nodes only and that they did not appear active (I wasn't clear what that meant other than I took it as a positive for the moment). He classified my mantle cell lymphoma at Stage 2.

He recommended a treatment plan of Rituximab and Bendamustine for 6 courses. He did not think it was a good idea to watch and wait. I will also be consulting with Mayo Clinic. I live part of the year overseas and the rest of the time is spent in the US. I really want to get as much clarity, confidence, and certainty as possible surrounding a treatment plan. Once that is achieved, I can make my decision whether to remain overseas and see if Mayo can work with the oncologist here regarding the treatment plan, or come back and travel to Mayo to be treated. I wonder if the treatment plan by Mayo and the oncologist where I am at overseas is reconcilable, whether there is much difference where I receive the exact same medication. Any thoughts?

Jump to this post