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Diagnosed with cholangiocarcinoma, can this be treated?

Cancer | Last Active: Jan 11 10:12pm | Replies (33)
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@billdemarco

looking for anyone with diagnosis of extraheper Outside the organs) bile duct cancer with no tumors . will be at 14 Chemo treatments as of next week and coming to Mayo for a second opinion. this has metastasized to the lymph nodes. have found no one with this diagnosis.

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Replies to "looking for anyone with diagnosis of extraheper Outside the organs) bile duct cancer with no tumors..."
Colleen Young, Connect Director | @colleenyoung | May 2, 2022

Hi @billdemarco, are you referring to extrahepatic cholangiocarcinoma, bile duct cancer outside the liver. Cholangiocarcinoma is a rare cancer. Extrahepatic cholangiocarcinoma is the most common type of bile duct cancer.

In addition to connecting with @suchita90 here, I'll also invite fellow members like @kjrita @afrancesca @clarke6 @mngardenaddict @jerrydrennan @chicory2010 to join this discussion. You can also read more in this related discussion:
– Cholangiocarcinoma – Bile Duct Cancer – anyone else dealing with this? https://connect.mayoclinic.org/discussion/cholangiocarcinoma-bile-duct-cancer-anyone-else-dealing-with-this/

Great that you're coming to Mayo for a second opinion. Are you going to Mayo Clinic in Rochester or another campus? How are doing with the chemo treatments? Side effects?

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wjdemarco | @wjdemarco | Jun 13, 2022

I have this, extraheper no apparent tumors , metastases to lymphnode
16 chemo and at mayo for second opinion.

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lvtexas | @lvtexas | Sep 11, 2022

@billdemarco - Hello. Where / what lymph nodes did the Cholangiocarcinoma spread to? What treatment options did you get or have taken?

Thanks, LVTexas

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