← Return to Diagnosed with cholangiocarcinoma, can this be treated?

Discussion

Diagnosed with cholangiocarcinoma, can this be treated?

Liver Cancer | Last Active: Jan 11 10:12pm | Replies (35)
Comment receiving replies
@billdemarco

looking for anyone with diagnosis of extraheper Outside the organs) bile duct cancer with no tumors . will be at 14 Chemo treatments as of next week and coming to Mayo for a second opinion. this has metastasized to the lymph nodes. have found no one with this diagnosis.

Jump to this post

Replies to "looking for anyone with diagnosis of extraheper Outside the organs) bile duct cancer with no tumors..."
Colleen Young, Connect Director | @colleenyoung | May 2, 2022

Hi @billdemarco, are you referring to extrahepatic cholangiocarcinoma, bile duct cancer outside the liver. Cholangiocarcinoma is a rare cancer. Extrahepatic cholangiocarcinoma is the most common type of bile duct cancer.

In addition to connecting with @suchita90 here, I'll also invite fellow members like @kjrita @afrancesca @clarke6 @mngardenaddict @jerrydrennan @chicory2010 to join this discussion. You can also read more in this related discussion:
– Cholangiocarcinoma – Bile Duct Cancer – anyone else dealing with this? https://connect.mayoclinic.org/discussion/cholangiocarcinoma-bile-duct-cancer-anyone-else-dealing-with-this/

Great that you're coming to Mayo for a second opinion. Are you going to Mayo Clinic in Rochester or another campus? How are doing with the chemo treatments? Side effects?

VIEW AND REPLY
wjdemarco | @wjdemarco | Jun 13, 2022

I have this, extraheper no apparent tumors , metastases to lymphnode
16 chemo and at mayo for second opinion.

VIEW AND REPLY
lvtexas | @lvtexas | Sep 11, 2022

@billdemarco - Hello. Where / what lymph nodes did the Cholangiocarcinoma spread to? What treatment options did you get or have taken?

Thanks, LVTexas

VIEW AND REPLY