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@loribmt

Hi @nhlbob “I'm so confused, bewildered and terrified at the moment…” Well of course you, are after getting diagnosed with a blood cancer and having differing opinions for treatment. It pulls the rug right out from under you! I’ve been there so I can truly appreciate what you’re going through.

From what I’m been reading about your disease, immunotherapy, in a combination with chemo, seems to be the predominant treatment along with a Stem Cell Transplant and in some cases, Cart T therapy.
Searching further I did find information that validates what you were told by the MD Anderson doctor regarding Chemo for Mantel Cell Lymphoma. It’s not used as a solo treatment anymore but generally in conjunction with an immunosuppressant targeted to the suppression of B-cells. Which, your cancer is recognized as a subtype of B-cell non-Hodgkin’s Lymphoma. So you’ll most likely be given a drug called Rituximab or Rituxin along with some forms of chemo drugs.

The Lymphoma organization website gives a good overview of lymphoma and treatments. Make sure you look at the menu on the right side of their site as it gives options for areas of interest.
https://lymphoma.org/aboutlymphoma/nhl/mcl/
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I found a little more reading for you in case you’re interested. We have a number of discussions, some older but still germane, regarding mantle cell lymphoma. The last site is a blogpost from Dr Grzegorz Nowakowski, a hematologist at Mayo Clinic.
https://connect.mayoclinic.org/discussion/my-son-was-treated-for-mantle-cell-lymphoma-ending-122014-so-far/
https://connect.mayoclinic.org/discussion/mantle-cell-lymphoma/
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https://connect.mayoclinic.org/blog/hematology/newsfeed-post/putting-the-precision-in-precision-medicine-care-for-non-hodgkins-lymphoma-1/
You mentioned being not being in the US. Will you staying for treatment where you’re currently living?

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Replies to "Hi @nhlbob “I'm so confused, bewildered and terrified at the moment…” Well of course you, are..."

Hi Lori - thank you so much for the reply and links. I just received the PET and bone marrow biopsy results today. The PET showed the lymphoma has not spread to any other part of my body, and the bone marrow biopsy showed it has not spread to the bone marrow. The oncologist said the lymphoma was isolated to the right inguinal lymph nodes only and that they did not appear active (I wasn't clear what that meant other than I took it as a positive for the moment). He classified my mantle cell lymphoma at Stage 2.

He recommended a treatment plan of Rituximab and Bendamustine for 6 courses. He did not think it was a good idea to watch and wait. I will also be consulting with Mayo Clinic. I live part of the year overseas and the rest of the time is spent in the US. I really want to get as much clarity, confidence, and certainty as possible surrounding a treatment plan. Once that is achieved, I can make my decision whether to remain overseas and see if Mayo can work with the oncologist here regarding the treatment plan, or come back and travel to Mayo to be treated. I wonder if the treatment plan by Mayo and the oncologist where I am at overseas is reconcilable, whether there is much difference where I receive the exact same medication. Any thoughts?