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@stanleykent

Theresa, Yes, am sure looking forward to spring and summer, seems like it is finally getting here. It is interesting that my WBC is going a different direction. Maybe SMZL presents itself differently for different folks. Am curious as to what others have experienced while they are watching and waiting. I think you were contemplating a second opinion,..... were you able to contact anyone? Stan

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Replies to "Theresa, Yes, am sure looking forward to spring and summer, seems like it is finally getting..."

Hi Stan, I found this study https://pubmed.ncbi.nlm.nih.gov/23484698/ indicating that in their small group of 19 newly diagnosis patients, WBC were high in 5 and low in 6. So counterintuitive to see such a contrast. Other factors seem more consistent. The good news is 100% response with Rituximab! My local oncologist has recommended a lymphoma specialist at UVA medical center in Charlottesville, VA. I will probably give that a try at my next follow up in August. My doctor has not mentioned a repeat bone marrow biopsy at any point which does make me wonder; I see so many mentions of them here. I want to be a diligent participant in my own care as far as possible. It's so helpful to hear from others who have this rare diagnosis. Thanks for the interest and encouragement!