← Return to Prolia treatment for osteoporosis: What is your experience?

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@aspine

My Rheumy wants me to go on Prolia also. But I've been doing a lot of digging about this drug. Apparently once you get on it, you're stuck on medication for life. Because the minute you stop the Prolia, your bones begins to disintegrate. So then the plan was to give you a different drug (I think it was (is) Evenity) to pick up where Prolia leaves off. And you have to stay on that or something else forever. I'm no expert, so I recommend you do your own research with reliable sources to find out more about these drugs. They ALL seem to have their problems. Many people have had good success with taking Calcium, Vitamin D3 and Vit. K2, and weight bearing exercise. Me personally, I've decided not to go with the Prolia.

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Replies to "My Rheumy wants me to go on Prolia also. But I've been doing a lot of..."

Actually you can only take Evenity for one year. Amgen makes both Evenity and Prolia so they also suggest Prolia AFTER Evenity.

You can also take a biphosphonate, Tymlos or Forteo after Prolia but yes, you cannot just stop Prolia, from what I have read and heard from docs. There can be an abrupt drop in bone density.

We don't know your DEXA scores. If your osteoporosis is not severe, I hope that your plan to rely on calcium, D3, K2 and weight-bearing exercise works well! If your osteoporosis is severe, I hope you can find a med that you can tolerate and find effective.

You need to weigh the risks against the benefits. I'm on prolia and will be for life but I would rather do that and have a decent life then break bones like my hip or spine and be in a wheelchair. Just my thoughts.