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DiscussionWet Macular Degeneration: What treatment helps you?
Eye Conditions | Last Active: Dec 7, 2024 | Replies (61)Comment receiving replies
Replies to "Ok it is me. I hung in there but went back to avastin for two years..."
@ivona
When you say you cleared up (and SO clear) and continue to see doctor "every few months", that you have (specifically, you wrote, "HAD" ) wet. macular degeneration I wonder just what you mean.
Do you mean you continue to get injections (when you go)? That is, you get injections even if/though your retinas are no longer wet (leaking)?
Or do you just get a check up?
Also, I'm confused by your description of your experience as you didn't name the drugs in question (in the thread title).
What drug were you taking when you were "almost cleared up" and which one made you worse? In your initial post (July 2020) you say you didn't get back to your original clarity, but later you wrote
You said you couldn't get back to your previous good results. Which meds figure in your experiences? In your initial post (you issue your initial complaint in the thread title - that you couldn't get back your initial good results), but later, say you achieved 20/22 in both eyes. That was all with two (at that time) years of AVASTIN?
(How is your vision now and from what treatment from your most recefnt post?)
Do you mean you actually had wet AMD (leaking, and presumably with blinding/damage resulting) in both eyes as late as May '20), then got THAT clear - 20/22 - in May/'22 ? Were you still diagnosed with WET macular degeneration then and are you still being treated (at whatever intervals) with Avastin?
I didn't know such a diagnosis could be reversed.
I was dxed with wet AMD in my right eye four years ago, and though it's no longer leaking with fluid, it's still dxed as "wet". (I assumed that was because it IS still damaged and COULD again begin to leak and/or develop fluid behind the retina.) Also, the “bad” right eye still sees “wavily” though there’s no active leaking.
(Note the left eye never leaked though it's a bit blurry despite only being dxed with some dry AMD)
Could you please clarify your AMD "journey" re names meds,
timetable of diagnoses and injections?
My retinal guy gave me three injections (one/month) for three months starting with the dx four years ago, and thereafter nothing, including no more injections.
All three were Lucentis.
My eyes are still somewhat blurry (and light sensitive) , the right markedly so, ever since the first dx when I noticed the undulating waviness - classic symptom. (I'm really only seeing at all clearly in the Left eye.)
I never see the doctor for more than ten - fifteen minutes while he examines my latest eye chart results and the results of my test for retinal fluid, scheduling appointments every six months (though more frequently if I complain of apparent worsening).
I always wonder if he's somewhat too casual, seeing me so infrequently and with no injections. (And always Lucentis).
Also never repeating the more complex test I was given for my initial diagnosis (sorry forgetting name) – tech injects dye to follow it through eye vasculature, requires me to be absolutely still. (OCT? FFA?)