@1710dave
Hi Dave,
Have your doctors ever told you that when you have 20 to 30 minutes seizures you’re in Status Epilepticus?
Hopefully you don’t live alone and if you’re married or similar does your mate have an emergency med to administer or call an ambulance? I used to have 20 minute seizures also and was often put in an induced coma. Do the doctors ever put you into a coma?
Which individual or cocktail meds have you been on?
I don't remember what drugs you've taken but I'd ask Neuro about Dilantin, if not completely effective you might ask about adding Phenobarbital.
Lamictal is a med which most people find tolerable and helpful. If memory serves it was found to be the most effective with Keppra second. It's also a broad-spectrum anticonvulsant. However, the benzodiazepines seem to be the most effective like
Diazepam (Valium),
Lorazepam (Ativan), Midazolam (Versed)
Dilantin and Phenobarbital are also used for Status seizures. Speaking of phenobarbital, I suggested to a man in Africa who was taking multiple meds to ask Neuro about it which he did and his doctor ordered it. He now only takes phenobarb and hasn't had a seizure in 3 or more year's.
I assume you’re on monotherapy and are only taking the Keepra. How much Keppra are you taking. Have you tried adding a secondary medication to the Keppra, if so could you share what it was?
How often do you have a seizure? How long do you sleep after such a long seizure. Sometimes I would sleep for five days straight.
Take care,
Jake

Jump to this post