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Small Fiber Neuropathy

Neuropathy | Last Active: Oct 3, 2023 | Replies (213)

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@kmst1994

Hi @johnbishop, thanks for your welcome and response. I am still in without a diagnosis, my PC doctor told me to stay off gluten and the neurologist I went to spent a total of 15 minutes with me, didn’t look at the symptoms and timeline document I gave him, and said I may have conversion disorder (I am aware of what that is and would even be open to that option) but did not offer any neurological testing before coming to that conclusion; pretty disappointing. My most concerning symptom is the electrical/burning/tingling sensations that seem to come and go throughout most days. I also wake up to the burning sensation in my chest and arms at night and early in the morning. It started more than a year ago, went into some type of remission, and now is back. With this I also now have chronic diarrhea. I do not have pain (other than burning), loss of mobility, numbness, or weakness of the limbs. For this reason I was not sure if the small fiber neuropathy sounds like me. Any help or thoughts is greatly appreciated!

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Replies to "Hi @johnbishop, thanks for your welcome and response. I am still in without a diagnosis, my..."

@kmst1994, The symptoms you describe sound very similar to Paresthesia.

"Paresthesia is numbness or a burning feeling that occurs most often in the extremities, such as the hands, arms, legs, or feet, but that can happen elsewhere in the body as well." --- What to know about paresthesia: https://www.medicalnewstoday.com/articles/318845

There is another discussion where you can learn what other members have shared about their symptoms and experience --- Paresthesia, abnormal sensations: https://connect.mayoclinic.org/discussion/paresthesiaabnormal-sensation/

Have you thought about seeking help or getting a second opinion at a major teaching hospital or health facility like Mayo Clinic?