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Small Fiber Neuropathy

Neuropathy | Last Active: Oct 3, 2023 | Replies (213)

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@johnbishop

Hi @kmst1994, Welcome to Connect. You will notice that we merged your discussion with another discussion on the same topic. If you click the VIEW & REPLY button at the bottom of the email notification it will take you to the Small Fiber Neuropathy where you can meet @kfrenc04, @acv, @julkun, @cehunt57 and other members discussing small fiber neuropathy.

The Foundation for Peripheral Neuropathy has some complementary and integrative therapies that you might find helpful here - https://www.foundationforpn.org/living-well/complementary-therapies/

I shared my neuropathy story in another discussion here - https://connect.mayoclinic.org/comment/310341/

Do you mind sharing what symptom of your neuropathy bothers you the most?

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Replies to "Hi @kmst1994, Welcome to Connect. You will notice that we merged your discussion with another discussion..."

Good morning. Numbness started in my legs very early on. Flutter also. Started when I was 29 years old when I contracted Mononucleosis. Now known as Epstein Bart Syndrome from what I’ve been told. Numbness has gradually moved through the years up my body. Not much pain. Hands feet and legs are very, very sensitive to cold. Lots of cramping in feet and legs. I’ve totally changed my diet. Now gluten free and no sugar. Eating foods that are supposed to help autoimmune system. Hopefully this will help. Hope this answers your questions.

The vitamin protocols that you can purchase are very, very expensive. Does anyone have a list of what to take and dosage so I can purchase on my own? Thank you in advance.