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@colleenyoung

That must be exhausting for both of you. I'm sure she finds it hard to be so dependent on the help of others as well. Do you have others who give you respite?

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Replies to "That must be exhausting for both of you. I'm sure she finds it hard to be..."

Caregiving is a full time job. It includes nursing duties, nutrition & laundry services , and PT/ entertainment. But it can be done by a healthy partner.
Kids and friends as visitors have a positive impact on state of mind in general. Not spending too much time watching TV is a daily challenge.
In terms of regeneration after resolving the diffuse brain tumor/lesion the exercise regimen seems to be key for regaining some independence.
I read that the Mayo Clinic has a multifunctional team working on nerve regeneration mechanisms. It was mentioned that there is a very large patient base (stroke, MS, Parkinson, progressive palsy, etc) where nerve malfunction plays a similar role. The number of CNS lymphoma patients is relatively small. Is there a way of finding new rehabilitation methods? Probably not or they are in a clinical test phase . Our leading lymphoma institution has not brought it up.