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DiscussionAnyone diagnosed with Primary Central Nervous System (CNS) Lymphoma?
Blood Cancers & Disorders | Last Active: 2 days ago | Replies (84)Comment receiving replies
Replies to "That must be exhausting for both of you. I'm sure she finds it hard to be..."
Caregiving is a full time job. It includes nursing duties, nutrition & laundry services , and PT/ entertainment. But it can be done by a healthy partner.
Kids and friends as visitors have a positive impact on state of mind in general. Not spending too much time watching TV is a daily challenge.
In terms of regeneration after resolving the diffuse brain tumor/lesion the exercise regimen seems to be key for regaining some independence.
I read that the Mayo Clinic has a multifunctional team working on nerve regeneration mechanisms. It was mentioned that there is a very large patient base (stroke, MS, Parkinson, progressive palsy, etc) where nerve malfunction plays a similar role. The number of CNS lymphoma patients is relatively small. Is there a way of finding new rehabilitation methods? Probably not or they are in a clinical test phase . Our leading lymphoma institution has not brought it up.