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Welcome, @merrycat. Fellow members @zenk @msmerry @cwhorton may have some ideas about dealing with pain and skin that feels like leather after the wound has healed.
I'm so glad you got appointments with dermatology and rheumatology and hematology at Mayo Clinic. Have you already been to Mayo? What treatments did you get? Have you told them about the residual pain and skin sensation of leather?
Replies to "Welcome, @merrycat. Fellow members @zenk @msmerry @cwhorton may have some ideas about dealing with pain and..."
I did get treatment. Rheumatology agreed with the treatment from my Rheumatologist.
Vascular treated my ulcers with wraps and daily application of Sanytl. I continued to see my wound center Doctor for weekly treatment. Hematology put me on twice daily shots of Lovenox, and transitioned me to Eliquis, a blood thinner. My ulcers have healed, my feet are starting to look like feet again, most of the pain is gone. My skin is finally healing also. I had about given up when I went to Mayo. I can't thank those Doctors enough.
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Merrycat, In all the time you have had these ulcer like sores on your leg have you had a punch biopsy near one of the sores to determine if you have Lividoid Vasculopathy ? If you do have LV ,not a Vasculitis , you need to see a vascular doctor to see if your small vessels, microvessels are blocked with fibrin . Then, a blood thinner is probably in order to get as much oxygen to the sores as possible. I take Xarelto 15 mg. daily . I would take 20 mg. if possible but I bruise too badly. There are many diseases that Mayo can rule out for you with blood tests that may contribute to LV. We continue to look for etiology for my LV but you may never know why you have it. I know that blood thinner works fairly well for me. Some do great with IVIG . Tell us what Mayo has to offer you. Thanks, Zenk