Hi, stage 4 colorectal cancer here

Michelle good morning ..my husband was diagnosed with stage 4 colon cancer with liver metastasis on dec, 07, 2018 and in January 2019 he underwent surgery for right Cecal mass and in February started chemotherapy. My hero did it all, avastin bev,irinotecan, the put on pills of capecetabine, for quite a few months, then he tried oxiplatin but the neuropathy was too much so we went back to capecetabine..all through 2019/2020 and late 2021 he underwent mapping of liver then Y90 treatments to right and left lobe of liver. Then we did Lonsurf We fought together a strong battle against cancer together. We were inseparable caring and loving of each other. We came to Greece in December for what was to be a visit home again and was hospitalized for 7 days but sadly my soul mate left me in my arms…the most difficult period.
Ask questions many of them of your oncologists, what options you have and research all hospitals and even European treatments available …there are some new treatments on the horizon but only beginning.
Cancer speaks and changes language in the body it affects, and no two cases are the same. Ask ask ask questions again and again.
And I call on all here to write and flood their senators lines to fund 1 trillion dollars for cancer research. Ask them how much toxicity in chemo can they tolerate, how much suffering are they willing to handle, how many losses of life will they put up with.
The treatment CAN be found and it must. We must all raise our voices together and fight for everyone who has cancer.
With all my prayers to you and to your caregiver(s) for healing. Prayers are a part of this journey. We become more spiritual in our journey together.
May the sound minds of the doctors and research scientists all over the world unite their efforts in Finding the Cure.
With all my heartfelt love,
Yiannis

Welcome @wifemom3. I love the inspirational poem you posted. Did you write it?
Allow me to bring in some fellow stage 4 colorectal cancer warriors, like @eddiebu @pjebp @tinad @sundance6 @duckduck2020 @margreet and others. Some are recently diagnosed, others have been living with stage 4 for sometime.

Michelle, this is still all so recent for you, and reading your bio, it seems like things moved very fast. Since surgery, what treatments have you had or are you having? How are you doing?

@margreet, my story is somewhere on this site. Diagnosed stage 4 colon cancer with metastasis in liver and pancreas. Had surgery march1 2019. Colon resection, liver resection, pancreas resection (wipple manoeuvre) and gallbladder removed because of gallstones. In June I started chemo. Had 8 sessions was very sick after that. Vomiting and diarrhoea was admitted to hospital and was there for 4 weeks until my bowels were back to acceptable level and discharged. Had every 3 month a CT Scan for a year and an MRI. Everything clear so far. Have my strength back and started my 4th year still cancer free and live a normal independent life . I am now 83 and am still checked out every 6 month. Am very grateful for the care and follow up of the medical team.

Hi Colleen. I can't take credit for the poem. I did not write it.
I am currently going through chemo treatments. I will have round 7 next week. I am on Oxiplatin, Avastin, and 5FU.
Honestly, I have to take things day by day. We are trying to find a new norm. The palliative care nurse came to the house last week and had a lot of helpful information for us.
I would love to connect with others going through this.

Thank you for sharing, Margreet. How encouraging that you are in your 4th year of being cancer free! Having a great care team is really key in going through this. Do you struggle with scanaxiety when going in for scans?

Yiannis- I am sending so many hugs to you. Thank you for the encouraging words.

May you be blest everyday in the journey and leave no stone unturned in your quest for cures … May our One Creator bless you with His Love!
Yiannis

Dear friend as we are all friends here having been touched by cancer or as caregivers, thank you for your response. Too many lives have been lost, too many toxic chemo have been administered in the hope that our loved ones can be cured.
The government and congress must I repeat allocate funding into the trillions to find cancer cures.
Our One Creator endowed us with a thinking kind and we now have to put these minds all over the world as scientists and medical doctors find the cures.
This is now my mission either solo or with everyone together…
Be blest…
Yiannis

Hello,
My husband was diagnosed with colon cancer a year ago in December.
He had a colectomy followed by 6 months chemo. Everything looked good up until his recent CT Scan. A nodule was found and removed successfully from lower left lung 2 1/2 weeks ago. It was colon cancer that had metastasized. He is scheduled to start another 6 months of chemo in 2 days. The Oncologist had my husband do another CT today and results show another nodule in lower right lung. We meet with the Oncologist Wednesday. I'm wondering if anyone out there has had similar diagnosis and what questions should we be asking the doctor when we see him?
Thanks,
T

Hi @tplante1970, welcome. I moved your message to this new discussion that @wifemom3 (Michelle) started only yesterday. She also has stage 4 colon cancer that has metasticized to the lungs. Your husband's timeline and Michelle's are very similar and you may benefit in connecting with one another.

In this discussion, you'll also connect with @nathan45 @margreet and others who have walked this path before you and can help you create a list of questions to ask the oncologist at your upcoming appointment later this week.

How is your husband's recovery going after the lung surgery? How are YOU doing?