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Anyone taken Evenity (romosozumab) for Osteoporosis?
Osteoporosis & Bone Health | Last Active: Nov 5 10:09pm | Replies (1348)Comment receiving replies
I have received Evenity for 10 months but now we are living almost 4 hours from home for the next few months and my doctor has tried to refer me to someone locally to complete the 12 month course but not able to find anyone. So I would like to know the difference in effectiveness for 10 months of treatment versus the full 12 months. If necessary I could drive home for the shots. I can't find any information to help me with my decision.
Replies to "I have received Evenity for 10 months but now we are living almost 4 hours from..."
Good evening and welcome to Connect. Thank you for presenting this very good issue. I have to tell you right away that I don't have an answer for you. Evenity is the newest osteoporosis treatment that both builds bone and protects it from reabsorption. So if you don't complete the 12 months of Evenity does that mean that not all of the bone development will happen? And then.......how can you prevent the reabsorption if you are not continuing for the entire course?
I have read that Evenity may be able to have a longer delivery time.....perhaps 18 months or more. However, your best bet is to call the manufacturer, Amgen, and talk with one of their medical specialists. Amgen also produces Prolia which is a reabsorption protector.
Here is the phone number: 800 772-6436. When answered I think you press "2" for patient assistance with an RN or other medical professional.
Afterward, would you please compose a post that can help other patients with similar concerns? I, personally, would also like to know what you learned and what you decided to do about completing the Evenity treatment.
May you be free, safe, and protected from inner and outer harm.
Chris
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You might call the manufacturer for some suggestions. They certainly can advise on any repercussions for skipping, or postponing, the dose. And will know which physicians, nationwide, are using it and can direct you to the closest physician. They can also liaison with the doctor so your not being a current patient of her or him isn't a roadblock.
There are osteoporosis injectables and IV infusions that are critically sensitive to even postponing dosing so it's a good idea to check that out. I know of one case where someone 'postponed' a Prolia injection for two weeks, not knowing how serious that could be, and experienced the Prolia 'takeback'...losing a lot of bone in that short period of time without having any idea that that was a predictable consequence. These drugs don't all act the same so it's important to get correct information so you can protect what you've gained so far.