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Chronic Pain members - Welcome, please introduce yourself
Chronic Pain | Last Active: 18 hours ago | Replies (7067)Comment receiving replies
Hi I’m Rena 67 Former RN Clinical Director Age 67 Disabled since age 52 Not properly Dx until age 60. I have been in intermittent pain since age 3 & chronic pain since age 52. I have mEDS(Myopathic) with crossover symptoms of Classical, degenerative disc disease osteoarthritis Have had 2 major spine surgeries for Spondylolisthesis & 10 other surgeries of various types. Have GI issues permanent nerve damage in my legs OAB Have an auditory processing disorder & more. Out of home can’t walk without either cane for short distances & rollstor for longer. Gets depressing sometimes being 67 but feeling like I’m in my 80s.
Replies to "Hi I’m Rena 67 Former RN Clinical Director Age 67 Disabled since age 52 Not properly..."
Greetings to you @rena55. I would also like to welcome you to Connect in addition to @sueinmn. Sue and I both have had some similar experiences as I have with you. I have also had several spine surgeries....3 at last count and I am being careful to not have anymore. It seems more uncanny that I have also had 10 other orthopedic surgeries.
And I have a pretty simple quality of life focus......that is to adhere to the quality of life objectives that I can support and accomplish with the assistance of my medical team. Most important right now is to keep up with the progressive pain from SFN by having two sessions of MFR (myofascial release therapy) every week and getting plenty of Yoga stretches, and walking exercise. Last year I undertook two joint replacement surgeries......knee and thumb so that at least I now have two very good knees and two capable thumbs. I want to keep up with whatever comes my way.......by practicing mindfulness and meditation along with spending special time with family and friends. Now here's the bottom line. I am already 80 and hoping to stay focused on finding joy in every day.
What can we do to help you find a benevolent path to acceptance?
May you be free, safe, and protected from inner and outer harm.
Chris
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We each must live in our own body. This was a revelation for me at age 66 with severe MAC infection and Bronchiectasis lung disease, plus degenerative arthritis . Sometimes it happens much younger due,to illness or inj6.