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Anyone else dealing with shingles?

Autoimmune Diseases | Last Active: Jun 24, 2023 | Replies (82)

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@donnamcd

I had shingles on my left arm and back shoulder in January and this is April and I am still in pain, I have tried acupuncture 4 times, (twice a week) but no relief yet . I don’t know what else I can do get relief

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Replies to "I had shingles on my left arm and back shoulder in January and this is April..."

Welcome @donnamcd, I'm sorry you haven't found anything to give you relief from the Shingles pain. Mayo Clinic has some information on the different medications and over the counter items that can be helpful here - https://www.mayoclinic.org/diseases-conditions/shingles/diagnosis-treatment/drc-20353060

I believe others have mentioned taking a cool bath or using cool, wet compresses on your blisters may help relieve the itching and pain. Has your doctor prescribed any medications to help with the pain?

@donnamcd You want to be sure you have had chicken pox. I was diagnosed with shingles, but my blood tests showed I had never had the cluck-cluck. So I started by starting some genetic testing, and discovered I have CALR (Systemic Fragile Capillary Disease, or "Clarkson's" Disease). The capillaries will break off under the skin surface of either one's outer skin package, or under the skin of ones organs such as liver, spleen, esophagus, etc. Then the skin begins to darken to gray or red. This diagnosis seems to be frequently missed and assumed to be shingles. Four MDs and two labs pronounced it to be shingles although there was no evidence I had cluck-cluck in my life, but plenty of evidence of CALR. oldkarl