← Return to Anyone diagnosed with Primary Central Nervous System (CNS) Lymphoma?

Discussion

Anyone diagnosed with Primary Central Nervous System (CNS) Lymphoma?

Blood Cancers & Disorders | Last Active: Sep 15 8:47am | Replies (78)
Comment receiving replies
@kippi1950

My 73 year old wife was diagnosed with CNS lymphoma in May 2021. She had 4 M-RVP cycles as induction therapy and 2 cytarabine treatments as consolidation follow up. The brain lesion was resolved (contrast brain MRI ) after 4 induction treatments. She recently had her 4th bimonthly MRI with no indication of recurrence.

Her most severe clinical symptoms were a frozen left shoulder and a left hand contracture. Her left foot/leg movements are impaired. Rigorous PT/OT has not had a substantial effect on motor skills and independence.
The rehab physician has suggested braces but effects are minimal. Any alternative rehab methods for a patient with an excellent prognosis?

Jump to this post

Replies to "My 73 year old wife was diagnosed with CNS lymphoma in May 2021. She had 4..."
Colleen Young, Connect Director | @colleenyoung | Apr 25, 2022

Hi @kippi1950, I wanted to add my welcome to @secglc2's.
I'm so glad to hear that there is no indication of recurrence. What a relief.

Frozen shoulder can take such a long time to rehabilitate. It took me about 13 months to get 80% of my range of motion back. Now 2 years later, I believe I have full use of my arm and strength. It took persistence, patience and dedication to keeping with the daily routine. I found it tedious and hard.

In my case, the cause of frozen shoulder was unknown. Your wife and @secglc2 had more to overcome.

@secglc2, I'm glad that physical therapy helped you. Would you mind sharing how long it took?

Kippi, how long has your wife been doing therapy? Is it a challenge to do the rehab exercises and stick to them?

VIEW AND REPLY