1. < Chronic Pain

How did you get relief with a spinal stimulator? Adjustments?

Posted by glenjunderwood @glenjunderwood, Mar 19, 2022

My name is Glen and i have had the Nevro HF10 spinal stimulator implanted since Sept 1, 2021 and the company rep hasn't been able to dial it in on my terrible lower back pain yet. I have complete confidence in this unit because the temporary one that they inserted worked unbelievably well. It's been 6 months and counting with no relief thus far. I'm hoping to reach out and hear from anyone out there about their experiences with this Nevro unit. Please help if you can! Thank You!

Interested in more discussions like this? Go to the Chronic Pain Support Group.

dkappel | @dkappel | Apr 19, 2022
In reply to @kschadewald2 "I have a pain stimulator and now I have been told that the stimulator doesn’t work..." + (show)
@kschadewald2

I have a pain stimulator and now I have been told that the stimulator doesn’t work on S1 pain. The only way I receive any relief is to lie flat in bed. Here is hoping that the S1 gives me some relief.

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Are you talking about a 10s unit ?

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glenjunderwood | @glenjunderwood | Apr 22, 2022
In reply to @slavmauve "I am curious. Did you get the Nevro implant?" + (show)
@slavmauve

I am curious. Did you get the Nevro implant?

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Yes, I got the Nevro HF10 implanted on 9/1/21 it is now4/22/22 and still no relief. Keep the faith they keep telling me. Have you had any relief yet from your 11/21 Nevro Implant? I sure hope so!

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1 reply
sanitarian248 | @sanitarian248 | Aug 30, 2022

Hi: I'm Robert. I have a burning pain that extends from the back of the left knee down to the top of the foot. I also have diabetic neuropathy in both legs but the burning pain began after knee replacement 5 years ago. Has anyone had any success with a Nevro unit for this type of pain? I did have an ablation but while the chemical ablation one worked the permanent did not. I have also tried a TENS unit. Thanks.

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1 reply
Mentor
John, Volunteer Mentor | @johnbishop | Aug 30, 2022
In reply to @sanitarian248 "Hi: I'm Robert. I have a burning pain that extends from the back of the left..." + (show)
@sanitarian248

Hi: I'm Robert. I have a burning pain that extends from the back of the left knee down to the top of the foot. I also have diabetic neuropathy in both legs but the burning pain began after knee replacement 5 years ago. Has anyone had any success with a Nevro unit for this type of pain? I did have an ablation but while the chemical ablation one worked the permanent did not. I have also tried a TENS unit. Thanks.

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Hi Robert @sanitarian248, Welcome to Connect. While we wait for other members to share their experience with Nevro, I thought you might want to read through the following discussions to read what others have already shared.

-- Comparison of Spinal Cord Stimulators from Boston Sci., Nevro: https://connect.mayoclinic.org/discussion/comparison-of-spinal-cord-stimulators-from-boston-sci-nevro/
-- Spinal cord stimulation: Will Nevro help when Medtronic didn't?: https://connect.mayoclinic.org/discussion/nevro/
-- Severe Burning Pain after Knee Replacement: https://connect.mayoclinic.org/discussion/severe-burning-pain-after-knee-replacement/

Have you looked into getting a Nevro stimulator?

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1 reply
sanitarian248 | @sanitarian248 | Aug 31, 2022
In reply to @johnbishop "Hi Robert @sanitarian248, Welcome to Connect. While we wait for other members to share their experience..." + (show)
@johnbishop

Hi Robert @sanitarian248, Welcome to Connect. While we wait for other members to share their experience with Nevro, I thought you might want to read through the following discussions to read what others have already shared.

-- Comparison of Spinal Cord Stimulators from Boston Sci., Nevro: https://connect.mayoclinic.org/discussion/comparison-of-spinal-cord-stimulators-from-boston-sci-nevro/
-- Spinal cord stimulation: Will Nevro help when Medtronic didn't?: https://connect.mayoclinic.org/discussion/nevro/
-- Severe Burning Pain after Knee Replacement: https://connect.mayoclinic.org/discussion/severe-burning-pain-after-knee-replacement/

Have you looked into getting a Nevro stimulator?

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I am in the process of considering a Nevro unit and that is why I am curious as to how well these units worked for other folks.

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slavmauve | @slavmauve | Aug 31, 2022
In reply to @glenjunderwood "Yes, I got the Nevro HF10 implanted on 9/1/21 it is now4/22/22 and still no relief...." + (show)
@glenjunderwood

Yes, I got the Nevro HF10 implanted on 9/1/21 it is now4/22/22 and still no relief. Keep the faith they keep telling me. Have you had any relief yet from your 11/21 Nevro Implant? I sure hope so!

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I have gotten some relief but not able to stay on one setting for very long due to overstimulation. I keep working with the Nevro tech, hoping to find that “sweet spot.”

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sueg42 | @sueg42 | Sep 1, 2022

Hi:
I was started with a nevetra unit , they went out of business. This implant required you to wear belt to charge battery. Not easy or quick.
They switched my battery to abott which is St.Jude around long time.
It has got me back on my feet.
I too have to adjust settings and time to time meet up with rep to adjust.
I have an iPad that comes with it to quickly adjust settings.
Just look at all your options .
Good luck 🍀

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gcranor | @gcranor | Sep 1, 2022

I am glad the rep is working with you on finding the right settings!

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eyount1959 | @eyount1959 | Sep 1, 2022

I have intractable phantom limb pain following a BKA. Has anyone received pain relief using a SCS device, and if so which device did you have implanted? Thank you in advance for all anticipated comments.

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suemaca | @suemaca | Feb 16, 2023
In reply to @glenjunderwood "Thank you very much for responding Slav i really appreciate it! I hope that you will..." + (show)
@glenjunderwood

Thank you very much for responding Slav i really appreciate it! I hope that you will keep me posted on your condition as we both progress toward the Nevro unit starting to work like we know that it can. As for me, I had an appointment with my Dr. and the company Representative on 3/24/22. The Rep. reset my Home controller with a new series of adjustments to make every four days. That was two weeks ago, i'm on program# 2 level 5 at this moment and nothing has worked yet unfortunately . I'm hoping that you will keep me informed of your progress and hope that your Hf10 will start working for you! Thanks Again! Glen

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Hello Glen,
I realise your post is almost a year old but can I ask if you found the right programme? I had my implant done late 2022 and have had NO RELIEF (not helped by the fact I can't have any injections as it will throw the result) am in pretty desperate pain and impatient to see results.
I do SO hope you've found your programme.I would be delighted to hear from you

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