Has anyone benefited from treatment claimed by Neuropathy Clinics?

Hi Jeff @jeffrapp, No I think it's always appropriate to discuss claims made to see if they add up. I can only share my experience and tell you that I did a lot of research on my own and was taking most of the supplements already. I also learned that some of the supplements that I was taking were not high quality and some like the Alpha Lipoic Acid I was taking was mostly the synthetic inactive stuff and not doing the body any good. I do follow some of the older members in the group who were bedridden and found relief from all of their symptoms and were able to get off of the prescribed seizure medications for the neuropathy pain. I believe the controversy you are referring to is from the Facebook group Bob left because of issues with the current Admin. I was also a member in the other group and it was a neuropathy support group in name only. The person running that group created a bogus Ripoff Report that you can Google and get all the details including Bob's response and some comments by people that it has helped. He also shared a captured YouTube video of the guy that filed the bogus report. Ripoff Report is another dubious organization (IMHO) that lets any disgruntled person say whatever they want with no consequences and no way for you to clear your name if you are the target without thousands of dollars of legal fees.

That said, I know it may or may not help everyone even though it's helped me. I donate to the Help Another Member (H.A.M.) program when I am able. The program gives new members in need a one month supply to get them started and sometimes more than one month when possible. The H.A.M program is totally a members supported program and continues to help new members when funds are available. One negative comment I've heard over and over and can be viewed differently depending on your beliefs or frame of mind is if you join the Facebook group and don't read the introduction and start asking basic questions covered in the new member introduction without trying to search the group, the moderators have no patience and will tell you that they expect you to do your part and read and learn like everyone else. Tough but I can understand it and everyone needs to do their own research to avoid scams because they are out there.

Bottom line for me is that all of the supplements in the protocol are legit and have been identified by different research organizations/papers to help with neuropathy symptoms. The group had a page with links to all of the supplements on Amazon because of their 2 day delivery and availability. If you purchased the items using the links, Amazon gave a small percentage to the group like they do for any charitable organization and you can actually select which 501c3 you want to receive the percentage of each purchase you make and not use their links by searching for the same product. Now that they have the 525 product, the process is much simpler and less pills to swallow which benefits everyone on the protocol. I don't see that they make much profit if I was paying an average of <$10/day vs $6.44/day for the 525. I'm sure they are making a profit which part of goes to the member investors and the H.A.M. program which is OK by me, especially since the bottom line cost for me is the same between old and new.

Hi John@johnbishop
Whew, that was a lot of work for you.
Thanks for the response, and for being so complete.
Based on your information, it appears that Protocol525 should be another consideration for @avmcbellar.
I'd be interested in replies from others who have had experience with this product.

Hi Jeff @jeffrapp, No I think it's always appropriate to discuss claims made to see if they add up. I can only share my experience and tell you that I did a lot of research on my own and was taking most of the supplements already. I also learned that some of the supplements that I was taking were not high quality and some like the Alpha Lipoic Acid I was taking was mostly the synthetic inactive stuff and not doing the body any good. I do follow some of the older members in the group who were bedridden and found relief from all of their symptoms and were able to get off of the prescribed seizure medications for the neuropathy pain. I believe the controversy you are referring to is from the Facebook group Bob left because of issues with the current Admin. I was also a member in the other group and it was a neuropathy support group in name only. The person running that group created a bogus Ripoff Report that you can Google and get all the details including Bob's response and some comments by people that it has helped. He also shared a captured YouTube video of the guy that filed the bogus report. Ripoff Report is another dubious organization (IMHO) that lets any disgruntled person say whatever they want with no consequences and no way for you to clear your name if you are the target without thousands of dollars of legal fees.

That said, I know it may or may not help everyone even though it's helped me. I donate to the Help Another Member (H.A.M.) program when I am able. The program gives new members in need a one month supply to get them started and sometimes more than one month when possible. The H.A.M program is totally a members supported program and continues to help new members when funds are available. One negative comment I've heard over and over and can be viewed differently depending on your beliefs or frame of mind is if you join the Facebook group and don't read the introduction and start asking basic questions covered in the new member introduction without trying to search the group, the moderators have no patience and will tell you that they expect you to do your part and read and learn like everyone else. Tough but I can understand it and everyone needs to do their own research to avoid scams because they are out there.

Bottom line for me is that all of the supplements in the protocol are legit and have been identified by different research organizations/papers to help with neuropathy symptoms. The group had a page with links to all of the supplements on Amazon because of their 2 day delivery and availability. If you purchased the items using the links, Amazon gave a small percentage to the group like they do for any charitable organization and you can actually select which 501c3 you want to receive the percentage of each purchase you make and not use their links by searching for the same product. Now that they have the 525 product, the process is much simpler and less pills to swallow which benefits everyone on the protocol. I don't see that they make much profit if I was paying an average of <$10/day vs $6.44/day for the 525. I'm sure they are making a profit which part of goes to the member investors and the H.A.M. program which is OK by me, especially since the bottom line cost for me is the same between old and new.

Hi Jeff @jeffrapp, No I think it's always appropriate to discuss claims made to see if they add up. I can only share my experience and tell you that I did a lot of research on my own and was taking most of the supplements already. I also learned that some of the supplements that I was taking were not high quality and some like the Alpha Lipoic Acid I was taking was mostly the synthetic inactive stuff and not doing the body any good. I do follow some of the older members in the group who were bedridden and found relief from all of their symptoms and were able to get off of the prescribed seizure medications for the neuropathy pain. I believe the controversy you are referring to is from the Facebook group Bob left because of issues with the current Admin. I was also a member in the other group and it was a neuropathy support group in name only. The person running that group created a bogus Ripoff Report that you can Google and get all the details including Bob's response and some comments by people that it has helped. He also shared a captured YouTube video of the guy that filed the bogus report. Ripoff Report is another dubious organization (IMHO) that lets any disgruntled person say whatever they want with no consequences and no way for you to clear your name if you are the target without thousands of dollars of legal fees.

That said, I know it may or may not help everyone even though it's helped me. I donate to the Help Another Member (H.A.M.) program when I am able. The program gives new members in need a one month supply to get them started and sometimes more than one month when possible. The H.A.M program is totally a members supported program and continues to help new members when funds are available. One negative comment I've heard over and over and can be viewed differently depending on your beliefs or frame of mind is if you join the Facebook group and don't read the introduction and start asking basic questions covered in the new member introduction without trying to search the group, the moderators have no patience and will tell you that they expect you to do your part and read and learn like everyone else. Tough but I can understand it and everyone needs to do their own research to avoid scams because they are out there.

Bottom line for me is that all of the supplements in the protocol are legit and have been identified by different research organizations/papers to help with neuropathy symptoms. The group had a page with links to all of the supplements on Amazon because of their 2 day delivery and availability. If you purchased the items using the links, Amazon gave a small percentage to the group like they do for any charitable organization and you can actually select which 501c3 you want to receive the percentage of each purchase you make and not use their links by searching for the same product. Now that they have the 525 product, the process is much simpler and less pills to swallow which benefits everyone on the protocol. I don't see that they make much profit if I was paying an average of <$10/day vs $6.44/day for the 525. I'm sure they are making a profit which part of goes to the member investors and the H.A.M. program which is OK by me, especially since the bottom line cost for me is the same between old and new.

My husband is about to give The Protocol 525 a try. As his spouse, I've been a member of that group since 2017 just reading studying the science behind it and reading other people's journeys Decided to stay a silent member to allow my husband the time to make his own decision if he wanted to try it or not. He has advanced ankylosing spondylitis and is numb from his crotch to his feet with recurrent shocks. He is on loads of gabapentin and wants off of it so badly. Will advise if he finds relief and improvement after 6 months, providing he does well with all the components. I am hopeful as I hate to see his suffering.

Lois/John, one of the methods used in these treatment centers is “photobiomodulation” which is the use of low level laser/light therapy which is proven to have a positive effect on cell mitochondria. I think you can buy a device on line for $200 and do it yourself. I don’t know if can cure neuropathy but believe it can possibly help some. I had undergone a demonstration last year in which one of these devices was used on my neck to erase wrinkles and I was amazed, the results lasted for about 4-5 months. I was told it could be used on all body parts and would also help with pain reduction. Unfortunately I could not justify the cost at that time. ($5000) Helen

Is there not a single person or doctor out there that has a real or valid answer for this problem?

Toni @avmcbellar here is the one I contacted in the Minneapolis area - https://realiefcenters.com/. They make it sound really good and they have customer testimonies but they show some charts for each person for where they were before they started treatment and how they are doing after treatment. Doesn't mention how many treatments, how much it cost or how they measured their success. I'm just really skeptical even though I've read and watched their videos - Really, pinwheel & tuning fork tests used as standard neuropathy tests?? RUN Forrest RUN because life is not a box of chocolates when you have neuropathy. 🙂

Sorry it's so late, but I just now found your post. I participated in a clinical trial for neuropathy at UIHC in Iowa City IA last summer. The PhD in neurology tested me every 2 weeks, and the "tuning fork" is indeed a legitimate tool using the vibrations to test nerve sensitivity. I don't know what you mean by "pinwheel" but sharp and blunt pins were also employed. So, not quackery.