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Did anyone undergo Car-T therapy for B cell lymphoma?

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Nov 7, 2023 | Replies (76)
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@judyhelensmith2022

Hello Bob - my appetite was only bad while I was in hospital - I lost 10 kgs in 4 weeks. I was also put on a high protein, high energy diet & I still use Sustagen as a meal replacement from time to time.
I was prepped for icu but pulled through at the last minute. I’d spent my first months of treatment in Darwin (1000 kilometres) at the top end of the Northern Territory and then because nothing worked on my NHL - DLBCL I was referred to Melbourne and the Peter MacCallum cancer centre in January this year.
I live in Alice Springs, Central Australia so a long way to travel both times. I hadn’t lived in my home for nearly two years 😢

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Bob, Alumni Mentor | @grandpabob | Apr 16, 2022

Hi Judy, - I am going to consider you very strong of character, allow me to “tip my hat to you.”Being away from home for that length of time undergoing treatment is no small feat! I hope that you have had family and friends that have been able to support you both close by and from a distance. Car T was not yet available here in Canada when I was treated, the logistics of it all were a problem, however not to the degree I expect you encountered.

Are you scheduled to have scans soon to review the progress of the treatment?

If you celebrate a holiday this time of the year, Happy Holiday. Please keep in touch as there is always someone on connect to listen.

Bob

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