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Mysterious shortness of breath: What has helped you?

Lung Health | Last Active: 5 days ago | Replies (3422)

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@lu2

Thank you Gabe! Sounds like the "breathing test" I did was the same as the lung function test you described. I feel like I couldn't get out the needed air because I was in the thick of an hunger for breath "episode" as I call it. I feel these episodes happen for days (say 5-7) and then for MAYBE for 2 days it seems to ease up, then return randomly again. I might have forgot to mention, the pulmonary doctor I saw had me also take 2 kinds of inhalers alone with the oral lung steroid, which didn't provide relief as well.
And yes about the sleep study! I actually was a very sleepy child/student growing up (even with ADHD), and in my mid-twenties finally went for a sleep study because my sister also had one and was diagnosed with borderline narcolepsy. From the sleep study it was clear that I have hypersomnia and can fall into a deep sleep easily and quickly compared to others, and just overall sleepiness. The study didn't show any other type of sleep issues like sleep apnea besides excessive sleepiness (hypersomnia).
I honestly feel that my breathing is impacting my heart or the other way around and I really wish I could get down to the bottom of it. I had no issues with my breathing or heart before January. I am seeing another cardiologist in a few weeks thankfully for another opinion. I really hope to figure out what could be triggering this hunger for breath so I can go back to how I was a few months ago, I don't wish this feeling on anyone. Thank you again for your reply!

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Replies to "Thank you Gabe! Sounds like the "breathing test" I did was the same as the lung..."

@lu2 It’s actually a good thing you had an episode during the test because it provides sort of “proof” or at least something for doctors to go by when they’re examining you. I remember hoping I would have an episode so the doctors could see, but I think I was feeling pretty decent that day.
How would you say your breathing affects your heart? That’s interesting because for a while I was having these random heart palpitations every now and then. This happened a couple of years ago but I don’t know if it had to do with my breathing issue. But still a point of curiosity nonetheless.

Do you know if you have any esophageal inflammation?

I strongly urge you to investigate Babesiosis as the cause of your air hunger. It is what caused mine. Many people who have Babesia duncani and other species have air hunger. The testing isn't that great, and you would need to see a physician that specializes in treating tick borne infections (even though you can get Babesia via blood transfusion or via maternal transmission in utero...and possibly even mosquitos because Babesia is related to Malaria, but this mode of transmission is only speculative).