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So confused - fibromyalgia and bones aching severely

Fibromyalgia | Last Active: Apr 9 6:15am | Replies (34)

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@kireraw

I have most of the same symptoms but I’m not dx’d with Fibromyalgia. I have Small Nerve Fiber Polyneuropathy. Small nerve fibers are everywhere in our bodies. In our skin they are responsible for sending heat, cold and pain signals to our brain. When they get diseased it can cause Allodynia which presents with skin hypersensitivity, exaggerated cold, heat or pain sensations and excessive sweating—hyperhydrosis. When the small nerve fibers in the bones or bone marrow get diseased it can cause the terrible deep aching bone pain. Tinnitus, eye problems, digestion—slow motility, belly bloat, constipation and bladder function are all symptoms of this disease. Small Nerve Fiber Polyneuropathy or Small Nerve Fiber Neuropathy with Autonomic Involvement can cause Positional Orthostatic Tachycardia Syndrome (POTS) which can give you dizziness and palpitations and vertigo upon standing. A recent study showed that nearly 50% of Fibromyalgia patients had Small Nerve Fiber Neuropathy. The best way to determine SNFN is via punch biopsy.

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This is a very old post - but still struggling with numerous conditions (42 yr old) which came on approx 2.5 yrs ago (NO COVID involvement) - Your basic synopsis above is a small fragment of my medical chart & I’d appreciate any more info you can help provide on the SFN! I was diagnosed with Mixed Connective Tissue Disease after a positive RNP test; confirmation of Hashimoto’s (long time under-active (or “actively being destroyed” ? thyroid); Fibromyalgia (which just appears to be the name of my widespread pain/discomfort issues; and the latest of which is the SFN (although the biopsy wasn’t 100% active SFN, Neuro said it’s definitely what’s happening & I’m just in beginning stages of it) - which is puzzling considering how frustrating/exhausting the symptoms I do have are!!! Feel free to private message me if needed! Thank you for your insights!!! Peaceful blessings headed your way!