← Return to Autoimmune hepatitis*
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Replies to "I was diagnosed with AIH 4 months ago. Looking to see if anyone has stayed in..."
@geedle12, I want to jump in here and welcome you to Connect. I am happy to read that your AIH is in remission.
I was once considered to have AIH when my GI was in the process of diagnosing my liver condition. That was 20 years ago, so I only remember parts of my history. I was prescribed prednisone, and then prednisone with azathioprine (to reduce the prednisone). I also had a liver biopsy and labs that indicated no effect of the medications. At that point, I had more tests that provided a different diagnosis. That is the limit of my AIH history.
Here is some information that I want to share about AIH. I think that you will be interested to refer to the Treatment Section where I found this statement, "Although you may experience remission a few years after starting treatment, the disease often returns if the drug is discontinued. Depending on your situation, you may require lifelong treatment."
https://www.mayoclinic.org/diseases-conditions/autoimmune-hepatitis/diagnosis-treatment/drc-20352158
What is your doctor going to do to monitor your AIH status? Will he be ordering routine labs?
Hello @geedle12 I’m sorry to hear that you have autoimmune hepatitis. I checked through the past discussions but no one mentioned stopping medications.
What has your doctor said about staying in remission if you stop medications?