Stage 3 chronic kidney disease (CKD): What specialists do I see?

Posted by rozalia @rozalia, Aug 24, 2016

My primary says I do not need to see a kidney specialist. Is this true. My blood chems are ok.

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@julieprayer

What dietary changes have you made?

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@julieprayer, I notice that your are at stage 5 ckd. I am a liver and kidney transplant recipient, and I see that you are a transplant patient and waiting for a living donor. Is that correct? I will be happy to connect you with other kidney transplant patients in the Transplant discussion group. Do you have any questions about kidney transplant that i can help you with?

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I also have stage 3 kidney disease,NAFL disease. Lupus. My primary checks me every 6 months unless I have an episode. No medications, allergic to most especially synthetic steriods. Not much they will do for my circumstances. If you feel you need medical attention seek it. Bless you. Pray all will be well.

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@vikingwoman

I also have stage 3 kidney disease,NAFL disease. Lupus. My primary checks me every 6 months unless I have an episode. No medications, allergic to most especially synthetic steriods. Not much they will do for my circumstances. If you feel you need medical attention seek it. Bless you. Pray all will be well.

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I had a serious urine retention crisis late last summer, which has been resolved but left me with stage 3b chronic kidney disease. There was mention while I was in the hospital regarding the urine retention issue about having a nephrologist see me while in the hospital, but that never happened and after that problem was resolved I heard no more about it. On my own I contacted a nephrologist in my system and am now being followed by her on a regular basis. Her staff contacts me once a week to see how I am doing, and she has me taking blood pressure measurements 5 times a week as they work with meds to lower my bp. I am now stable at a good bp. They also consult about diet and other matters, all to make sure I get better if possible but no worse for as long as possible. The nephrologist certainly thinks I need to be seeing her on an on-going basis for these reasons, and I sure feel safer knowing someone is monitoring my chronic kidney disease.

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@paul55

I had a serious urine retention crisis late last summer, which has been resolved but left me with stage 3b chronic kidney disease. There was mention while I was in the hospital regarding the urine retention issue about having a nephrologist see me while in the hospital, but that never happened and after that problem was resolved I heard no more about it. On my own I contacted a nephrologist in my system and am now being followed by her on a regular basis. Her staff contacts me once a week to see how I am doing, and she has me taking blood pressure measurements 5 times a week as they work with meds to lower my bp. I am now stable at a good bp. They also consult about diet and other matters, all to make sure I get better if possible but no worse for as long as possible. The nephrologist certainly thinks I need to be seeing her on an on-going basis for these reasons, and I sure feel safer knowing someone is monitoring my chronic kidney disease.

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@paull55 Good for you, being your own advocate and looking for a nephrologist yourself! I am glad to hear you did that.

Staying on top of your kidney issues is important. And, it sounds like the staff at the doctor's office is following you closely. It's definitely a win-win situation! There are countless stories of how monitoring and self-education can keep us with decent kidney function for a long time. Blood pressure issues and diabetes appear to be the top two reasons for chronic kidney disease.
Ginger

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@paul55

I had a serious urine retention crisis late last summer, which has been resolved but left me with stage 3b chronic kidney disease. There was mention while I was in the hospital regarding the urine retention issue about having a nephrologist see me while in the hospital, but that never happened and after that problem was resolved I heard no more about it. On my own I contacted a nephrologist in my system and am now being followed by her on a regular basis. Her staff contacts me once a week to see how I am doing, and she has me taking blood pressure measurements 5 times a week as they work with meds to lower my bp. I am now stable at a good bp. They also consult about diet and other matters, all to make sure I get better if possible but no worse for as long as possible. The nephrologist certainly thinks I need to be seeing her on an on-going basis for these reasons, and I sure feel safer knowing someone is monitoring my chronic kidney disease.

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Good for you 'acting on my own' and seeing the specialist. And good for the specialist fir not always requiring a referral too.

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@callalloo

Good for you 'acting on my own' and seeing the specialist. And good for the specialist fir not always requiring a referral too.

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I agree

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In reply to @flannery54 "I agree" + (show)
@flannery54

Welcome, @flannery54. Do you also have chronic kidney disease?

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@colleenyoung

Welcome, @flannery54. Do you also have chronic kidney disease?

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My GFR’s are borderline low, So I think technically yes. But the nephrologist did not say that yet. I’ve just had one appointment have another one coming up up.
Why do you ask?

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@flannery54

My GFR’s are borderline low, So I think technically yes. But the nephrologist did not say that yet. I’ve just had one appointment have another one coming up up.
Why do you ask?

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I asked because I saw you had made your first post and wanted to welcome you and help you connect with others like you. Have you got a list of questions to ask for your upcoming appointment?

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@billchitwood

He is now taking lukewarm showers (but same result). He has promised to use the bench and handheld shower head - but he doesn't always follow through. I also got him bath wipes to use between showering. Because of feeling like he is going to pass out in the shower he is now very reluctant to take a shower. I monitor him but sometimes he will get up in the middle of the night when he can't sleep and take one and I am a sound sleeper. He has also promised to stop doing that lol. He does drink a lot of water - with his enlarged prostate this also drives him nuts! Especially as he has a terrible time getting out of his chair. All other times his Atenolol keeps it at a very good level, even when he appears ready to pass out from going to and from the bathroom. He hasn't wanted me to call his doctor. Said he doesn't want any tests done or more medications given to him (on 8 different meds now). So I'm left to try and help him by 'gut' feeling.

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My husband was having "white outs" for years and we couldn't figure it out. When he became incontinent/leaky, we ended up at a urologist. It turned out that he was never emptying his bladder. Who knew: it was strange. However, a urolift by a urologist later, along with some meds and he is experiencing less dizziness and definitely better at night and less leaky. It was a simple procedure, fairly new. My husband's bladder has lost its flexibility, but works ok now that he is able to totally empty.

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