Hello, Teresa! (@hopeful33250)
Thank you for your post! I'm finding this discussion to be fascinating. When I started it, I hadn't realized that so many of us had faced a similar dilemma when trying to put a name to what ails them. If I may jump right in …
I've not had any serious falls. In fact, for many years, I'd had none, even though a half dozen most every day, I'd feel like I was about to fall. In the past 12 months, I've had a few actual falls––no broken bones, but lots of dings and scraps. The increasing frequency is what's got me worried.
I've never had an EMG. From what you say, Teresa, it sounds like an EMG is a very revealing test. You probably noted in my earlier posts that I'm in the care of a neurosurgeon. Based on a cervical MRI, he's the fellow who diagnosed borderline cervical myelopathy––not requiring surgery (in his opinion); instead, some cervical PT and yearly checkups. Since my concern is uncomfortable walking, awkward gait, off-and-on wobbly balance, and a fear of falling, an EMG may be what's necessary for me to be able to put a name to my problem finally.
Also, as I am about to resume PT (on 4/20), I wonder if I should ask that our focus be less on my cervical back and more––far more!––on walking/gait rehabilitation (if there is such a focus).
One other thing you mention, Teresa, that has me thinking: Might I benefit from a PD exam? Some years ago, when I was already aware of my slowly deteriorating balance, I'd raised the question of PD with my primary doctor. She administered a few simple tests there in the exam room and concluded, No, Ray, you needn't worry about PD. But that was several years ago.
Again, Teresa, thank you for all of your insights!
Cheers!
Ray (@ray666)
Hi Ray, @ray666
I am glad that some of my thoughts were helpful to you. Yes, I agree that an EMG might be very helpful for you in understanding your situation better. I'm surprised that no one has suggested it, but often we do need to be our own advocates and this might be your case.
The best way to determine if you might have PD is to schedule an appointment with a movement disorder specialist. These doctors are neurologists who have special training in movement disorders and PD is one of those disorders. You might take a look at information about PD because there are a lot of symptoms that are overlooked in diagnosing PD. These are referred to as non-motor symptoms and include problems with sleep, constipation, voice problems (very soft voice usually), and often a lack of facial expressions. If you go to the Michael J. Fox website or the Davis Phinney website, you will learn more about the variety of symptoms of PD. I do not have tremors so I don't look the part of a typical PD patient. Here on Connect we also have a discussion about PD. Here is the link, https://connect.mayoclinic.org/group/parkinsons-disease/.
Just for your information: Movement disorder specialists are found at your larger medical facilities and/or teaching hospitals, you will not necessarily find them at a local hospital and/or community health center.
I look forward to hearing from you as you seek out an answer to your perplexing symptoms. Will you post again?